People of any background, gender identity or sexual orientation etc can be diagnosed with cancer. Please be welcoming and supportive when talking to others.
We keep this a safe space for everyone. To find out more, take a look at our Community Guidelines.
just looking for resources and research 33 years ago massive facial reconstruction due to tumor on cheek. ACC STILL here, very positive person got on with life, even walked back into classroom to teach 6 months later BUT 18 months ago went to GP...
Concerned that there are so many ACC sufferers out there with no relevant support. This post trying to stimulate interest and posts
Hi, I have just been diagnosed with adenoid cystic carcinoma . I have a 31mm tumor in the base of my tongue . Ive been told this is chemo resistant , so has anyone had a tumor in the tongue and can advise on treatment , surgery etc?
Hi - recently had a small adenoid-cystic tumour removed from my upper lip area. All happened very quickly and still struggling to process. Went from having a small lump for a few years that suddenly grew and hurt, to having it removed to being told it...
Hi, I’m new on here and just messaging to say hi and any helpful advice appreciated. My husband was found to have ACC after a scan in the usa in May last year for something completely different. He was found to have a tumour in his neck which was removed...
Hello, my Daughter has just received a Diagnosis of AAC with localised perineural and bone involvement. Now told has lung mets and awaiting referral to the Christy to see Dr Metcalf. She is only young and I just wanted to reach out to anyone else with...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi everyone I am 8 weeks post reconstruction surgery for ACC of palate (T1). Got the all clear from histology but advised to see oncologist by the surgeon because at a previous operation 3 months ago (when they thought my tumour was benign) there was...
Hi, I was given the news today that the stenosis in my trachea is ACC but it is inoperable and I'm awaiting a PET scan before treatment is discussed. I'm really trying to be positive although everything I read leaves me feeling that my outlook isn't...
Hi all I was diagnosed in March 2020 with ACC in my trachea (start of the pandemic) I had a debulking and radical radiotherapy which left me with a few swallowing issues and still fatigue. in June this year I was told that I now have nodules on my lungs...
