• 1 reply
  • 3 subscribers

Hi - recently had a small adenoid-cystic tumour removed from my upper lip area.  All happened very quickly and still struggling to process. Went from having a small lump for a few years that suddenly grew and hurt, to having it removed to being told it was cancer to being told all clear after CT scan, in space of 4 weeks over Christmas/ New Year.  Feel like a fraud saying I had cancer…. I found out at the same consultancy appointment that told me that they were sure they had removed it all. CT scan results 12 days later confirmed.  So many of you are having a much more difficult journey. My question is how long will the surgery area hurt? And it’s still numb/tingly all the time.  I describe it as feeling like been stung by a massive bee who injected me with popping candy! 
thank you

  • Hi  and a very warm welcome to the online community which I hope you'll find is an informative and supportive place to be.

    I'm sorry to read how your lip is still feeling and it sounds very unpleasant!

    I don't have the experience you're looking for but I noticed that your post hadn't had any replies yet. I hope you don't mind me suggesting that you also post this question in the head and neck cancer group where you might find others with similar symptoms.

    To join just click on the link I've created which will take you there. One you've joined, you can then start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'. 

    It would be great if you could pop something about your diagnosis and tests so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.


    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"