Radiotherapy or not?

ER1

Hi Elaine

I don't have the experience you're looking for but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where hopefully it'll be seen by someone who can help.

x

Thanks  

Acc can appear later on in the lungs if there is perineural spread it may well appear later on.

i had radiotherapy as do most people. It is your decision x

Thanks, yes I’ve decided to have it. Just waiting to get started now 

elaine 

Go for butt you be fine 

I ruth hope all goes well with you fingers crossed..i startin radiotherapy soon wat was it like if you don't mind me  asking

Hi,

Best wishes to you for your radiotherapy. You have already been through a lot.

i had 6 weeks radiotherapy 33doses when I was 56

 I coped well but it is tough and I did lose some weight with the altered taste. The hospital was very good at supporting. I am sure that will explain everything to you and most people cope with it OK. I am now 11 years since the radiotherapy and 13 years since my diagnosis I am glad I had the treatment as I think it slowed the spread down 

the accrf web site and the SGCUK are good sites for support with others with ACC and plenty of research which helped me 

Good luck 

Ruth 

Thanks replying x

Very best of luck it can be so isolating having a rare cancer well done for seeking support from the group x

Acc is rare but there is a lot of research and support groups to get involved with 

Salivary Gland Cancer uk and accrf can put you in  touch  with others with the same illness 

where are you in the uk ? 
the Christie in Manchester is very involved with research