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Hi! Could I hear about people's experiences using Aza-Ven as a bridge to SCT. We have had our consultation to discuss treatment regimes for my mum's AML. The consultant said the mutations aren't good or bad, which classes it as intermediate AML. Both...
I am completely devastated. I am so scared. I can’t lose him, I’m panicking and crying so much and can’t eat or sleep. He has started the gentler form of chemo. But I’m just so scared of the prognosis. I had a manic episode and psychosis nearly 2 years...
Good morning all, my first post here and a bit of a long one. My mum was diagnosed with AML in September 2025 and has been a strong fighter going through 2 rounds of Vyxeos, getting remission after the first round but unfortunately spiked back up after...
Hi x, my mum was out of the blue diagnosed with a rare form of AML last October. The cancer is AMML and it’s terminal. It’s been an awful time since October for both of us and my mum, who’s 83, has spent many days in hospital. I’ve been with her virtually...
My husband of over 30 years was diagnosed out of the blue with AML at the end of August, since when he has been hospitalised with brief breaks after each round of chemo. Initially he went downhill for the first week then spent a week in icu 'circling...
He is still really weak and shaky. He is not eating solid food, he is on food supplement shakes, he is trying to have 1 meal of fruit and yogurt, but often can’t. He is on day 66. He has had flu and has an infection in his lung he is sleeping at lest...
I have been having chemo for AML and in 3 weeks time will have a bone marrow transplant at Kings College Hospital in London. I signed my content forms yesterday, and am beyond terrified of how ill the chemo and procedure will make me. My journey so far...
My wife was diagnosed with AML and a mutated IDH1 gene (December, 2023). Treated with azacitidine and Venetoclax starting January 2024, which helped for 18 months, then she relapsed. Her condition worsened really bad, but after couple of months was prescribed...
My Dad is in his 80s and two years ago was diagnosed with AML with a prognosis of 2 years He had a bit of acazatine treatment before being stopped due to risk of stroke. It is now past 2 years, he is fighter but now has an itchy rash due to the leukemia...
Hi just wanted to say hello as new to this forum. I was diagnosed with AML in 2017 and had to have a SCT as my cytology showed a defect in the high risk category,my sister was my donor and I remained in remission until September 2023 when I relapsed...
