Aml - palliative care

Hi Liz2355a3cab7 abd welcome to this corner of the community but ever so sorry to hear about your dad.

My journey is rather different but there are a few group members who are navigating this journey at the moment so let’s see if they pick up on your post.

As for the practical and emotional challenges of supporting your dad and indeed yourself you may benefit from joining and posting in our communities general……

Supporting someone with incurable cancer

……. support group where you will connect with a wide range of members navigating the exact same support challenges.

You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

For good information do check out Leukaemia Care UK who produce very good information and run various support platforms, they also have a Support Line on 08088 010 444

Always around to help more or just to chat

Thank you for your kind words. I will certainly look onto the support 

Hello Liz

I'm so sorry about your dad - and that your family are not speaking to you. What a horrid situation. I hope you have other loved ones or close friends who can give you some comfort and emotional support?

My brother also has leukemia and has had some unbearable itchy rashes over the past fourteen months.

I'm afraid I can't offer any advice but can at least empathise with you and wish you love and hope for your dear dad.

Sending much love and hugs.

Penny xxx

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Thank you for your kind words. I have close family who are supporting me through this difficult time.  My Dad has since been admitted to hospital, of which I was able to be their with him for a few days. I think the next step is palliative care, the hospital has been very supportive and updating me, as I am next of kin

I am sorry to hear your brother has Aml, the rashes are very difficult to manage. 

Sending hugs and thoughts to you and yours

Thank you so much for your reply, Liz. I'm so glad you have close family around you to give you the support you need. Thinking of you at this heartbreaking time.

Sending much love, Penny xxx

Thank you. Dad passed last night, I am broken  but he is now trouble free and at rest xxx

I'm so sorry to hear this, Liz. As you say, at least he is pain free and at rest. That is exactly how I feel about my dear brother. Seeing them suffering with no hope is beyond unbearable.

I'm so glad you have close family around you.

I shall be thinking of you and holding you in my heart. I'm so very sorry for your loss.

With much love, Penny xxx

Thank you for kind words. I'm very touched and appreciative. 

Thinking of you and your brother, every day is a blessing. Sending you hugs and strength  x 

Bless you, Liz.

Sadly, my lovely brother passed away on Monday. It has been a huge shock to us all. We are beyond heartbroken.

Thinking of you, too, and your family.

With lots of love

Penny xxx ️