My Dad is in his 80s and two years ago was diagnosed with AML with a prognosis of 2 years He had a bit of acazatine treatment before being stopped due to risk of stroke.
It is now past 2 years, he is fighter but now has an itchy rash due to the leukemia. How can I find out how the cancer progresses and if this is the beginning of the end? My family are not speaking g to me and doctors won't tell me anything as I am not an lpa and my Dad also has dementia.
Any experiences would be appreciated
Hi Liz2355a3cab7 abd welcome to this corner of the community but ever so sorry to hear about your dad.
My journey is rather different but there are a few group members who are navigating this journey at the moment so let’s see if they pick up on your post.
As for the practical and emotional challenges of supporting your dad and indeed yourself you may benefit from joining and posting in our communities general……
Supporting someone with incurable cancer
……. support group where you will connect with a wide range of members navigating the exact same support challenges.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms, they also have a Support Line on 08088 010 444
Always around to help more or just to chat
