I am completely devastated. I am so scared. I can’t lose him, I’m panicking and crying so much and can’t eat or sleep.
He has started the gentler form of chemo. But I’m just so scared of the prognosis. I had a manic episode and psychosis nearly 2 years ago. He held me like a baby and I made him cry.
I don’t know how to help him, he is 78.
Wishing you all love and strength.
Hi Kittycat and welcome to this corner of the Community although I am always sorry to hear about your dad’s AML diagnosis.
I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but I have been on my journey since 1999 when at 43 I was diagnosed with my first rare (8 in a million) incurable but treatable type of Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL)……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
First it would be helpful for you to ‘talk’ this through with someone…. Leukaemia Care UK have a Support Line on 08088 010 444…… why not pick up the phone and call them.
Let’s look for group members to pick up on your post and get back to you.
As for the practical and emotional challenges of supporting your dad and indeed yourself you may benefit from joining and posting in our general cancer……
Carers only (if you are his caregiver)
……. support areas where you will connect with a wide range of members navigating the exact same support challenges.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing.
Always around to help more or just to chat ((hugs))
Hi Kittycat I’m so sorry that you’ve joined the child of a parent with AML club. It is terrifying and everything you’re feeling right now is totally valid. My mum was diagnosed with AML late August after being rushed into hospital struggling to breathe and in and out of consciousness. She’s still undergoing treatment but we’re all remaining positive and it’s heading in the right direction.
The best advice I can give is to practice grounding techniques and focus on rooting yourself in reality and not going on google!!! Stay on trusted sites like this and seek out support for yourself as well. Xxx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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