Hi just wanted to say hello as new to this forum.
I was diagnosed with AML in 2017 and had to have a SCT as my cytology showed a defect in the high risk category,my sister was my donor and I remained in remission until September 2023 when I relapsed this time with a different defect on cytology,I had a different donor for second SCT and am now well 17mths on.Has anyone here had two transplants?
Hi KAB and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
…….. more so as I had to have 2 Allograft (donor) Stem Cell Transplants….. The first Allograft was in June 2014 but I was told on Christmas Eve 2014 that the graft had failed……. My second Allograft was in Oct 2015…… both SCTs were with cells from my big brother.
Due to me having to be treated for my 2 rare T-Cell NHLs at the same time my main treatment journey from late 2013 to late 2015 was rather complicated (See my story) but I am now over 10 years out from my last treatment, I turned 70 last month and I doing great.
Always around to help more or just to chat.
Thanks for the welcome,you have certainly been through a lot as well ! I haven’t met anyone who has had two SCT so it’s encouraging to see how long you have bin remission since the second transplant,our bodies go through so much with the treatments it’s amazing we can still function but I keep myself as fit as I can and just take each day as it comes 
You will be the second person I have meet who have had a double Allograft SCT.
Yes 10 years out from my second and in the whole things are good…… but it is widely accepted that SCT is the gift of life that keeps on giving…… some of the gifts can be lemons but in these circumstances you just make the best lemonade you can.
The immune system can be very fragile, I had no infections during my SCTs but 10 months post everything kicked of for a number of years….. with me 7 times back in hospital (40 days) with Chest Infections, Lung Fungal Infections, the RSV Virus, Pneumonia x2, Neutropenic Sepsis x2, low BP so passing out, a heart attack.
The past few years I have had a Colonoscopy, MRI and Prostate biopsy but nothing was found…… just an enlarged Prostate that will be monitored every 6 months but I did get to see a fly through of my 8 year old Hiatus Hernia…… it’s so big that it actually fully encloses around my stomach and pancreas gland but I am very thankful that I don’t have any problems with it and only need some Lansoprazole to control the lining of the stomach. If the HH becomes a problem then it will be a challenge what to do!!!!!!
….. and I ended up in A&E late Sunday into Monday as I have been fighting a number Viruses for the past 6 weeks……. But it all about walking into the storm and not letting it get the better of me.
