Hi, i’m new to this group. I have read some threads and grateful to see some positive stories. My partner was diagnosed with AML 2 weeks ago after 6 years of being healthy but with blood cancer. He started in patient chemo on Monday and was ok until...
Hello everyone im new to the site and wanted to introduce myself. I supported my parents to a hospital appointment today and my Dad was told he has blood cancer Im not sure how I feel as I still feel numb and not sure if it’s hit me yet
I was diagnosed with AML (NMP1 + FLT3) back in June 2021. Had 4 rounds of Chemo and then went on to have a transplant in Feb 2023 with the MRD levels not as low as they would have liked. 2 months later they decided that the transplant hadn’t worked and...
hi, I'm really looking for some advise from some who may have been where we are at the moment - husband is 11 days post chemo for AML and his blood levels just aren't rising. Yesterday there was a glimmer but his N levels have gone from 0.01 on Sunday...
yesterday we were told that my husbands first lot of chemo hasn't worked. Today was going to be the day they did the bone marrow biopsy to see how it had gone but that has now been cancelled. We have a meeting with the consultant this morning to discuss...
Hi all My mum ( (87) is currently in hospital where she’s now been for 4 weeks. She has myeloidplastic syndrome and was admitted with neutropenic sepsis. She had been having regular transfusions which unfortunately weren’t lifting her HB very much....
I was diagnosed with APML in December. I'm having twice weekly arsenic in hospital, had 2 bone marrow biopsies but won't find out if the treatment is working until my appointment with the consultants on 9th February. I feel like I am in limbo. I also...
My husband was diagnosed on Friday with AML and I feel completely lost with it all. I'm outwardly being strong for him and our children (all grown up and left home) but in private I feel ..lost !! he's in an Oncology ward in a very good hospital, being...
Thought I'd sign up and see if I can help by sharing my experience. Got the all clear after AML treatment Sept '20 at Maidstone Oncology, who I cannot praise enough. Still feeling great and nearly back to full strength now, There is hope, the diagnosis...
Hello all, Dad has done so well since I posted last year. He was given 2/3 months last October but responded really well to chemo and went into remission. Then 4 weeks ago he started getting breathless again after his latest chemo and a tooth infection...
