I feel completely lost !!

Hi again Fur baby mummy and well done navigating across to this corner of the Community although I am always sorry to see folks joining these groups.

As I said in your first post in the New to Community I don’t have AML but I was diagnosed back in 1999 with a rare, incurable but treatable type of NHL reaching stage Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I know this journey rather well...... and as I also said I have had two Allogeneic Stem Cell Transplants (SCT) with Stem Cells cells from my big brother......

(Please note that consultants still tend to use the older name of Bone Marrow Transplant but this is very very rarely done with peripheral bloods Stem Cell Transplants being just as effective and less risky).

This PDF will help you understand more about Allo SCT

Another note is that only 20% of people going into SCT will find a family donor match....... but the world wide Stem Cell Register will be used to find a match...... so take a breath.

Let's look for some of the AML group members to pick up on your post.

Always around to help more or just to chat ((hugs))

Hi Fur baby

I was diagnosed with aml in April 2018 it was a devastating shock for my family. I was approaching 61 years old. 
I had three rounds of chemotherapy over the summer and gained remission, unfortunately I relapsed in February 2019 ( this seems quite common especially in older people) I went on to have a bone marrow transplant in the May of 2019 . It was a tough journey but now life is almost normal again.

Hope all goes well for your husband.

Feel free to private message me if you wish

Mark

Hi Mark

thank you so much for reaching out to me - your story is an incredibly hard one but sounds like you have reached the otherside now.  

He has been told its treatable but having not gone through this before we have no idea about any of it.  and the words Bone Marrow are really scaring me - i.e. what if his sisters aren't a match etc.!!

I've only been on this group since yesterday but i do feel better already so thankyou again

x

Hi Again Fur baby

Dont worry about getting a match as they always ask relatives first. My donor was a 31 year old American and they also had another match from Europe. Try not Google as a lot of information is out of date. 
mark

Hi fur baby, I am a daughter of someone who was diagnosed exactly a year ago today with AML. She had chemotherapy and gained initial remission. She had just finished her ‘top up’ chemo while waiting for a SCT when she unfortunately caught sepsis which then led to her being in a coma for 2 weeks. Her SCT was pushed back but eventually she had it and is now recovering. 

please do not be afraid of wondering where your husbands donor will come from as I went through the same feelings. Unfortunately my uncle (my moms brother) wasn’t a match. However, thanks to Anthony Nolan they found my mom a match from a gentleman in the United Kingdom and I will be forever grateful as while all this was happening I was carrying her first grandchild.

As for feeling lost and not knowing much information I was exactly the same! But PLEASE DO NOT Google as the information is misleading. Ask for leaflets and information packs from consultants/docs/nurses.