yesterday we were told that my husbands first lot of chemo hasn't worked. Today was going to be the day they did the bone marrow biopsy to see how it had gone but that has now been cancelled. We have a meeting with the consultant this morning to discuss. My husband was on his own yesterday when he was told and we are both, understandably, absolutely devastated. Very nearly 7 weeks into this journey and back to square 1. Husband asked about further treatment and consultants were having meeting last night to discuss. That particular consultant wants to carry out a very agressive form of chemo but needs to run past the panel. Husband also asked if this doesn't work, what then? Apparently the answer was - then we have run out of options.
Has anybody else been in a similar position? does run out of options mean completely run out or run out of cures, but drugs are available to elongate life? Also i have some questions written down but should i be asking anything else?
thank you
Hi Fur baby mummy and sorry to hear this but this can happen.
Although I have a different type of blood cancer we had to ‘keep going’ with my ‘only’ aggressive option in the hope it would open the door for my to go into Stem Cell Transplant…. and it did.
Go into the meeting asking what ‘they’ are recommending….
if your husband is not being treated at a top cancer hospital then you need to ask for his case to be reviewed by other experts.
I was treated by a good team of Haematologists but they still put my case out for review to ensure they were doing their very best.
If they say that ‘they’ have no further treatments ask about clinical trials.
Even when I was told that the plan I was on was my final roll of the dice I was told that there would be othe ‘palliative’ treatments that would give me an unspecified period of tine
((hugs))
Please It’s Mike and I (and my wife Fiona) totally understand these times far to well.
Always around to chat or just to rant at ((hugs))
FLAG-Ida is one of a number of salvage treatments that are used to open the SCT Door.......yes it's strong but it has to be to achieve its goal. Everything crossed for this to do the job ((hugs))
