Hi,
i’m new to this group. I have read some threads and grateful to see some positive stories. My partner was diagnosed with AML 2 weeks ago after 6 years of being healthy but with blood cancer. He started in patient chemo on Monday and was ok until last night after his second chemo when he had fever, diarrhoea and very fatigued.
Hi Primulathroughpavement and welcome to this corner of the Community although I am always sorry to hear about your partners diagnosis. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but I was diagnosed back in 1999 with a rare, incurable but treatable type of NHL reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I know this journey rather well.
So let’s look for the group members to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘AML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups most are online at the moment….. the one I attend does have a few folks with AML in it so worth checking.
Always around to help more or just to chat
