Hey I'm Chris Just after st Patrick's day on the 18/3/22 my younger brother was diagnosed with AML. Since that diognoses he has been on a ventilator and put in a state of heavy sedation during his chemo as his breathing is laboured and he's been very...
Hi, I have just joined this forum. I was diagnosed with acute AML last August after feeling unwell for a few weeks. Within a day of being admitted I had a stroke. I was 63. It was all an absolute shock for me and my family. The stroke has luckily improved...
Hi, I was just wondering if anyone could help me with experiences of FLAG-IDA treatment? I’m currently on my last day of chemo of FLAG-IDA and feeling pretty rough. so I guess I wanted to know how long the feeling lasted for other people and how long...
Hello, I am new on here and hope this is the correct area to ask my question. November 2019 I was diagnosed with AML NPM1 mutated FLT3 ITD. I went on the AML 18 trial with CPX x 3, I went into remission but 5 months later it was back. I have since been...
Hi new here. Mum got her diagnosis last Wednesday. We're all reeling from the shock. She has been offered chemo to.proling life a bit longer. She's having a major wobble about having it done as she is already so fatigued with AML she's not sure she's...
Hi All , new to this group my son has just been diagnosed with AML 2 weeks ago, He is just about to start intensive chemo, but it keeps being delayed due to a spiking in his temp. This is a frightening time for us. I was hoping someone could give me any...
Hi, I am my mums carer who has AML and she is struggling with fatigue. Most of the time she is slumped in a chair or lying in bed not able to do much, it is very difficult to watch and feel so helpless. The stairs are the worst for her as she is so breathless...
I'm in remission and tested positive for covid what should I do??.
Does anyone know how long it takes for your body snd immune system to recover after chemo please?
Hi All Anyone else out there that's had an SCT (allo) in the last few months. If so has your team given any advise on when you are able to have your first Covid vaccine. My wife had her SCT on 4th August, we're not expecting a jab until maybe 6 months...
