AML now on Gilteritinib, is this possibly why I have no appetite?

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Hello, I am new on here and hope this is the correct area to ask my question.

November 2019 I was diagnosed with AML NPM1 mutated FLT3 ITD. I went on the AML 18 trial  with CPX x 3, I went into remission but 5 months later it was back. I have since been on Gilteritinib. After approximately 6 months my bloods improved to an ok-ish level, not great but not bad either. 

I also have diabetes, COPD. Heart problems caused by medication but under fairly good control. I am in need of a gall bladder operation and I am on the long waiting list.

After speaking to another Gilteritinib user, I find that the hot stabbing pains I have had almost since the beginning of taking Gilteritinib it must be that which is the cause.

I have dry eyes which I recently read on Facebook is a symptom!

So now I am wondering if my compete lack of interest in food is due to my gallbladder or Gilteritinib. Does anyone else on Gilteritinib have this problem?

Thank you

  • Hi again  I put Gilteritinib into the search Mag tool near the top and selected ‘Anywhere’ and got a small number of hits - have a look and as a

    kways you can hit reply and see if the folks are still looking into the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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