I'm looking for guidance from others with a similar diagnosis. My husband, age 51, was diagnosed with AML on 1/10/18. The docs immediately did an induction round of FLAG-Ida. My husband's bone marrow biopsy showed a reduction from 65% blasts to 48% blasts...
Hi my husband diagnosed 8th May with acute myeloid leukemia on 9th May had his first biopsy and started first round of chemo yesterday we have been told a gene has come back as tp53 so the chemo he on not working so they are hoping he will go on a trial...
My AML TP53 has returned to my bone marrow. Chemo cyarbine and venetoclax had me in remission for 4 months - now the haematolgist at MacMillan says my SCT has to be cancelled and there is nothng else to offer me. I feel abandoned.
Hi everyone, I'm 16 days post transplant & looking at sun protection for when I'm discharged from hospital. Does anyone have experience or recommendations of Factor 50 sun block creams? Boots Soltan range seems to tick alot of boxes. Also, I'm after a...
Hi all Can anyone inform we as to the time frame post SCT for AML to the time you can have your childhood vaccines, in addition, if anyone has recently had them, were there any side effects. My wife is now 9 months post transplant, doing very well...
I would appreciate any advice tips etc on how to deal with life as an outpatient. will leave hospital tomorrow with need to attend 7 days a month for chemo injections land regular blood test and PICC line dressing. really asking how to adjust to this...
hi, my mother is 64 and was diagnosed with AML 4 days ago, she has now developed 2 infections during this time and is currently in hospital with oxygen and her levels keep dropping without it, we were told that she will be starting treatments soon but...
My dad 84 years old, 3 weeks ago was diagnosed with AML he wanted to start chemo since he'd already Beat cancer 2 times throat and prostate cancer. he started the chemo ended up getting an infection and had a heart attack the infection was sepsis he was...
Sorry I haven't been on in a while. My husband was diagnosed last October with AML and after lots of chemo treatment and radiotherapy and stem cell transplant treatment in March, we got the news in June that he was in remission showing 100% donor cells...
Hello everyone, this post is an update on my mum’s story. I am writing this to give hope to those who have been given bad news and they find it very hard to believe that things could change :) My mum was diagnosed with AML in November 2020. She was 46...
