Hi All , new to this group my son has just been diagnosed with AML 2 weeks ago, He is just about to start intensive chemo, but it keeps being delayed due to a spiking in his temp. This is a frightening time for us. I was hoping someone could give me any advise on coping strategies as I am really struggling to deal with this.
Many Thanks AML45
Hi again Aml45 and well done navigating to this corner of the community.
As I said in your post in The New to Community I don't have AML but have lived and been treated for a rare incurable type of Lymphoma for over 22 years.
Delays in the treatment of blood cancers happens a lot so don't over think this. Your son's clinical team are getting him in the best position to have his treatment as it's never great to go forward when any underlying infections.
As I said before I had a number of treatment delays of 2-3 weeks over my years and it made no real difference to the outcomes although it is stressful as the mind goes into overdrive as we can tend to over think these situations.
My long suffering wife would say that you have to trust in his clinical teams and the science. You are all a passenger on this journey so trust is important. Having clear information is also important...... what does the journey look like...... how long.... what is the end goal? With clear information you can order your head better.
You don't say how old your son is....... in these strange times and if he is not a child then he most like is going to appointments himself........ ask if he would be willing to put his phone on speakerphone so you can listen into appointments. The more you know the more the noise between the ears will calm down.
Lets look for some of the AML group members to pick up on your post and and I will always be around to listen and answer questions as best as I can.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
((hugs))
