NHS has nothing else to offer me

My AML TP53 has returned to my bone marrow.

Chemo cyarbine and venetoclax had me in remission for 4 months - now  the haematolgist at MacMillan says my SCT has to be cancelled and there is nothng else to offer me.

I feel abandoned.

  • Hi John, sorry to read your post. Being in a remission window to go into Stem Cell Transplant (SCT) has very fine margins and being in remission is indeed required for 99% of all cases but some types of blood cancers fit in the 1% where going into an Allo (donor) Stem Cell Transplant can be done not in remission…… I fitted into this little window for both my Allo SCTs

    You may want to look at the Leukaemia Care UK site as they may have information about clinical trials.

    Mike - Thehighlander

    It always seems impossible until its done - Nelson Mandela

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  • Dr has discussed with Addenbrooks and they come up a new treatment of stronger chemo .combination .

    Onwards, never give up 

  • Good news. Over my 23 years I have found the Nelson Mandela quote to be very true…It always seems impossible until its done.

    Mike - Thehighlander

    It always seems impossible until its done - Nelson Mandela

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