My AML TP53 has returned to my bone marrow.
Chemo cyarbine and venetoclax had me in remission for 4 months - now the haematolgist at MacMillan says my SCT has to be cancelled and there is nothng else to offer me.
I feel abandoned.
Hi John, sorry to read your post. Being in a remission window to go into Stem Cell Transplant (SCT) has very fine margins and being in remission is indeed required for 99% of all cases but some types of blood cancers fit in the 1% where going into an Allo (donor) Stem Cell Transplant can be done not in remission…… I fitted into this little window for both my Allo SCTs
You may want to look at the Leukaemia Care UK site as they may have information about clinical trials.
Good news. Over my 23 years I have found the Nelson Mandela quote to be very true…It always seems impossible until its done.
