Burketts lymphoma

FormerMember
FormerMember
  • 8 replies
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Husband told he has this been in hospital 12 weeks now . Trying to find someone who is not a doctor to help me stay hopeful .don't know anyone who has had this or even heard of it

  • Hi linda100. Welcome to the community. Sorry to hear about your husband.

    If you feel like reading about Burketts Lymphoma, there is information on the Macmillan site HERE .

    You may also like to join the Family and Friends Group . There you can share your feelings and get support and advice from others who have loved ones in similar circumstances. Hope all goes well.

    Best wishes to All,   rily.

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  • FormerMember
    FormerMember in reply to rily

    Thank you tried to join family and friends hope if done its right just learning how to use tablet and how to spell ,hopefully  by reading others experiences I won't feel so  helpless and alone,

  • FormerMember
    FormerMember

    Hi Linda

    You should join carers only group as well and you will get support from other carers Here Carers Only - Discussion Forum

    It is very scary being in your position and I do hope you find some help and comfort from others here. They are a great bunch of people.

    If you ever feel you need more expert help and support the helpline is wonderful and staffed by really caring knowledgeable people who will do everything they can to help you understand your Husbands diagnosis. It is open weekdays 9-8. The number is 08088080000

    Thinking of you post any time you need to. Xxx

    Hugs xx

  • FormerMember
    FormerMember in reply to FormerMember

    Dear grandma Fox thanks for your advice will do ,don't know if I'm putting this message in the right place  you were right I'm very scared

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Linda

    You have joined the carers only group so it would be best to put any further posts on that group as this one is not very active. More people will see your messages on carers site. I do understand how scared and sad you are, everyone on the carers site will understand and try to help and support you through this.

    xx

  • FormerMember
    FormerMember

    hi I'm a man who was diagnosed with this in 2016, I was 42 and given this news after falling down the stairs.

    like yourself we had never heard of it before and was told its very rare, i was stage 4 and given 8 weeks to live

    I had a massive fight on my hands, I stayed in hospital for 9 months and endured intensive treatment and I can honestly say it took everything I had to not let it beat me, my wife and family gave me strength I wanted to go home to them

    I'm 4 years into remission now i hope that gives you hope if I can help with any questions you have then please message me love and hope to your husband and you...shane x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi thank you for sharing your story, it really gives me hope for my dad!! So pleased you are fighting 

  • FormerMember
    FormerMember in reply to FormerMember

    have they been treating  him with r chop chemo positive attitude  goes along way hope he pulls through the other side