I have my first chemo treatment a week from Wednesday. I'm curious to see if people who cold capped covered your hair in public between treatments. The idea of only washing my hair every 7-10 days is fine but I think I would be too self-conscious to not have it covered. Plus the thought of my hair falling all over the place.
Hi epf and a very warm welcome to the Macmillan Community but I am so sorry to hear about your diagnosis.
I have had over 750hrs chemo for my 2 types of rare Non Hodgkin’s Lymphoma's but when it comes to blood cancers…… Cold Capping is not used as it has a negative affect on the effectiveness of some chemo’s….. but other cancer types are different.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms)………… but you don’t say what type of cancer you have but if you tell me your type of cancer I can direct you to the best groups…….. but you can have a look through this link Cancer Specific Groups where you will find all our dedicated cancer support groups listed.
These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from members who are navigating the exact same journey.
Have a look through the LIST above and once you find the support group for your cancer type....... click on the link and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
