So I am partially on this road with suspected uterine cancer. Waiting to see the consultant, but scans have shown a couple of things that need confirming by a gynaecologist. My gp has stressed I must take some one with me as they have seen the report from the scans and is reading as significant for suspected cancer. Is it normal for my head to be like a clock pendulum? I am ok with things, then will think I must complete my will, or if I have treatment what kind of wig will I choose, to feeling numb, sick and unsure. I have long covid which I manage daily, and I am noticing the fatigue is beginning to show its ugly head. This is so new, to me and my family, my appointment is 8/4/26 due to the bank holidays and staff leave. I don't want to sound like a drama queen, or minimise anyone's journey, but i'm so unsure right now. Thank you for taking the time to read.
So sorry that you are going through this. I emailed my doctor's practice saying that I was experiencing post menopausal bleeding. I didn't even visit the surgery they fast tracked me to a consultant. Within 2 weeks I was in hospital having a hysteroscopy, then an MRI in a week. I had a phone call to return to the hospital. I went with my husband to see the consultant. It was then I noticed the MacMillan nurse come into the room and then it hit me. I was so shocked and couldn't speak. All I heard was the word cancer and thought my world was over. My advice would be take someone close with you just incase. It was uterine cancer for me which she said was Stage 1a possibly 2, grade 1. All of this meant nothing to me at the time. My head was in a turmoil. All I did was cry. I just couldn't take in anything anyone was saying. My husband had to take over.
I had a hysterectomy 2 weeks ago, about 2 months from when I first emailed my doctor's surgery. I was in a mess before, during and after my surgery. It has taken a long time for me to get my head around it all. What help me more than anything else was the support from nurses on this website. I choose to do online chat with them rather than trying to talk because I couldn't. When you online chat you can save the conversation and they send you links to look at. That helped me so much as I was able to read over their advice/answers at my pace. Why don't you phone them or do an online chat? They are so kind and reassuring. I never felt I was asking a 'stupid' question.
It is very scary and trying not to rush ahead with things is very hard. It must be even harder for you as you are poorly with long covid. There are no right or wrong ways of approaching this and your feelings are totally valid. It is a shock and you need time to process the journey. Do not do what I did and google the internet! Stick to this website or NHS website for answers or information. It you can't find an answer, then phone them (or online chat). Also my doctor's practice has a dedicated cancer medical professional working parttime who I can phone at any time during their working hours. Perhaps see if your surgery has the same system?
Take care and been kind to yourself.
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