Hi all wow what a shock that was to be told I have low grade (stage 2) follicular lymphoma. I went into A&E with a suspected appendicitis. After scans, and a laporoscopy which removed lymph nodes I was given the news 3 weeks ago. I am shocked because I don't feel unwell I am 50 in March, I cycle and run and try to look after myself, I don't smoke. I am currently on active monitoring so I am trying not to worry too much and just praying that it will be many years before I need any treatment. I don't know whether I am in denial because of how I am handling it and I just wonder if at some point I am going to lose it. My friends cannot understand how I am still running and cycling but why not if I can and feel well enough to. My thinking is, if I keep myself fit then when I do need treatment I will be fit and hopefully it will help me cope x
Hi and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and I am especially sorry to hear about your FL diagnosis.
I was diagnosed with another type of low grade NHL in 1999 (see my profile) and it took 14 years before I had to have full on treatments.
The Community is organised into dedicated support groups and I see you have joined our supportive Follicular lymphoma group, this will be a good place to connect with others navigating the same type of cancer journey.
To find the group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. Then you can introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones) you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
I will keep an eye open for you in the FL group.
All the very best
