I am new to this community I am scared and frightened and need advise of people suffering the same problem
Hi and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and I am especially sorry to hear about your diagnosis.
Although I had a different type of cancer a cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups so can I recommend you join our supportive Head and neck cancer group, this will be a good place to connect with others navigating the (support of a family member on the) same type of cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. Then you can introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones) you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
All the very best
Hi Nobby, are you Robert?
I am Dani and I hang out in the Head and Neck Cancer group. Pop over and put a post up. Click the link NEW HERE SAY HELLO , click on the +NEW sign at the top on the right and tell us all about yourself.
There are plenty of people surviving and thriving after a similar diagnosis. I am two years out of radiotherapy for bast of tongue cancer living a charmed life on a small holding in Wales with my husband. Come and say hello and we'll do our best to get you through. You aren't alone.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Nobby
Pop over the Head and neck cancer you’ll find us a small friendly bunch. I am Hazel I too was in your position May 2018 now 30 month after finishing treatment I am living my life to the full. I had tonsil cancer with several affected lymph nodes 35 radiotherapy sessions snd 2 chemo I know you’ve said mouth cancer do you know any more ? It will help you and us to get you through this. Don’t be scared I am a wimp and I did it.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Whatever cancer throws your way, we’re right there with you.
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