Hi and a warm welcome to the Online Community but sorry that you needed to find us. I am also very sorry to hear about your PTEN diagnosis. I have to be honest and had to do a serch on your condition.
I did a search using the search tool near the top and did get some hits..... but not recent ones but do have a look.
This Community is organised into various support groups. Our first list is for our Cancer specific Groups. The second list is for our various our Cancer experience groups. To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. Then you can introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones) you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
((hugs))
