Hello. Where to start?! My daughter discovered a lump on her neck in February last year. Because of Covid and the scan department changing her urgent referral to non urgent, she didn't get an ultrasound scan until December, then had to have a biopsy beginning of January this year. 2 weeks ago my 18 year old daughter and I were told by a thyroid consultant that she had papillary carcinoma in her thyroid. We were told it came as a complete shock to the team as they weren't expecting that to come back in the biopsy report as she has overactive thyroid. Apparently having overactive thyroid and developing cancerous nodules doesn't really happen? Yesterday, we saw a thyroid surgeon, who dropped a bombshell and said he's not convinced it's cancer! Has anyone else had this situation where you've been told a biopsy may be wrong?? He's told us the only way he'll know for sure is to remove the right side of her thyroid, which he's hoping to do the middle of next month. It's seems so far away!! The last two weeks after initially being told it's cancer were hard enough, and now we're being told to wait even longer. I'm so confused and scared for my daughter.
Hi and a warm welcome to the Online Community but sorry that you needed to find us. I am also very sorry to hear about your daughters diagnosis.
A cancer diagnosis in the family brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups so can I recommend you join our supportive Thyroid cancer group, this will be a good place to connect with others navigating the support of a family member on the same type of cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. Then you can introduce yourself by putting up a ‘New Thread’, you could just copy and paste the text from this your first post. You can also join in with existing discussions by clicking on 'reply'.
Talking with others caring for family and friends will help a lot so do checkout our Family and friends as you will connect with others walking the same journey supporting family and friends through their cancer journey.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
((hugs))
