Hi all. Sorry I am new and just found out my partner has leukemia. They think it is CML but his bone marrow results are not back yet so we aren't sure what stage he is at. My head is spinning with it all and not sure what to expect. And I can't even go see him due to covid
Hi and a warm welcome to the Macmillan Online Community, a Community that no one really plans to see themselves joining, and so sorry to hear about your partners possible CML diagnosis.
I was diagnosed with a rare type of Non Hodgkin’s Lymphoma way back in 1999 and the positive thing I can bring at this point in time is treatments have come on a long way during these many years.
Staging in blood cancer is not to be seen in the same light as in solid tumour cancers and on the whole is mainly used to identify the best treatment and for how long.
But the BMB is the final part of the diagnosis journey and once a plan is put together the battle between the ears will calm down.
A cancer diagnosis brings a lot of confusion, stress and many questions but talking with other people who are on the same type of journey helps a lot.
The Community is organised into support groups you may want to have a look at our Chronic myeloid leukaemia group as this is the place where you will connect with others walking the treatment journey both as a patient or family.
Follow the above link then choose ‘click to join' or ‘join’ when the page opens.
You can then introduce yourself, post questions or just join in with existing discussions by clicking on 'reply'.
Its always good to talk and the Macmillan Support Services provides lots of information, support or just a listing ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available.
You can use other methods to contact our Support Services (LINK) and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
Our Online Information and Support Section is a good place to find information covering diagnosis, treatments and pages covering most types of cancers.
All the very best.
