I have just had my third session if chemotherapy FECC I think it’s called. They tell me that they can treat my condition but not cure it. I am frightened about how long I have to live.
Hello , I’m sorry to hear about your diagnosis and how understandably frightened you feel right now. I haven’t been through breast cancer or the chemotherapy that you mention but I was diagnosed (back in 2015) with metastatic melanoma, incurable but like you treatable. I know I wondered about the same thing and wether to ask for a prognosis, and coping through coming to terms with the uncertainty as it only being a statistic.
The community works in groups on here so that you can find quickly a group on here with relevant experience I’m going to suggest a couple and put links in for you to click on.
Below is the link I joined to read and then when I was ready to post a discussion to introduce myself and ask questions.
I was also thinking that you breast cancer that has spread elsewhere the groups below would be relevant, to find people on the same chemo for their experiences.
Another warm welcome to the club no one wants to join :-/
My wife had FEC for BC, so I hope it isn't making you feel too nauseous - Are you due any more chemotherapy sessions with FEC or following on with another type ?
Do please check out the groups KT has linked to above, especially the "Secondary Breast Group" as there is a Positive Secondary Stories discussion there which can help with the 'how long worries'
If you are continuing chemotherapy the main breast group has a regular monthly chemo club discussion where ladies help each other with support and advice.
You don't mention where your secondary is situated but most can be kept stable for many years, some indefinitely which we hope is also your situation.
Hope this is of some help for now, take care, G n' J
Hello i am sorry to hear about your diagnosis.Lots of people know me here so I just to share my story so far positive.I was diagnosed In May 2019 with breast cancer stage 4 spread in my lungs and liver and kidney.Since August receiving weekly chemo with some breaks on my request.I am still responding well.I have no my liver and kidney clear.And Now its 1 year and getting stronger and stronger.They evenbchanged my chemo regime insteady of 4x weekly Paclitaxel I am just having 3x and 1 break off. I am even returning to work after 1 year been at home.
I dont say keep positive because some people dont like it but keep your head up.There is many people living with thia horrible disease.The treatment is harsh the best thinkg is to look after yourself.
