My son was first diagnosed with ALL when he was 8 in 2002. In 2016 he relapsed and had a stem cell transplant in oct 2016. Jan 2018 he relapsed had Carr t therapy which failed followed by more Carr t therapy which also failed.Awaiting yet another stem cell
Hi Jane Barsham and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your son going on the Stem Cell Transplant Rollercoaster again.
I can truly understand as I have been through two Allo SCTs with cells from my brother - it’s a long story so hit my Community name.... but CAR-T was not around in 2014/15 when I had both my Allo’s.
Can I direct you to this link to our very supportive Stem Cell Transplant group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.
I will keep an eye open for you and we can walk this with you ((hugs))
