Good morning all, so thankful to finally find a place with likeminded understanding souls.
I have Lymphedema which is steadily getting worse. My local NHS have said they do not provide care for it. However, they have referred me to a specialist who monitors it. I have venous reflux as a result of all of this and my Lymphedema was caused by extensive surgery below the waist.
I can barely walk and receive no benefits or help due to my GP’s surgery not updating my records, nor are they willing to write letters for disability living, help at home and a blue badge.
Normally a very positive soul, I feel like I have been forgotten by the system. I look forward to learning from those of you who have had similar experiences and hopefully learn more. Many thanks ahead for having me here. Love, L
Hello , and welcome to the online community. I’m sorry to hear your having trouble with lymphoedema, I’m hoping I can help with some suggestions of groups you can join, I’m putting a few links below for you to click on and look at.
https://community.macmillan.org.uk/cancer_experiences/lymphoedema/discussions
https://community.macmillan.org.uk/cancer_types/cervical-cancer/discussions
You may also want to put a question in the ask an expert section
https://community.macmillan.org.uk/cancer_experiences/ask_the_expert/ask-about-lymphoedema/discussions or use the Macmillan support line for a chat through things or any questions you may have about benefits or complaints.
0808 808 0000 is open 8am to 8pm, (on New Years Eve until 5pm)
Best wishes
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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