Hello Everybody
My name is Jenny 67 yrs and I am new to the community.
I was diagnosed with Ovarian Cancer in Nov 2016. Had 8 Sessions of Chemotheraphy and was due for debulk surgery. Unfortunately a few day’s before Surgery I was informed that the Anesthetist Review on me has determined I was a very High Risk Patient with various risky commodities and the Surgery was refused. Yes! I have other illnesses one of which is life threatening called Addisons Disease where my Adrenal Glands had packed up and stopped producing ADRENALINE the Stress Hormone. As you all know the Stress hormone is vital for life keeping my stress levels at a minimum. The lack of this hormone had a detrimental effect on my body. The only treatment for this is Corticosteroids the replacement hormone for Adrenaline for the rest of my life. Therefore I have for over 20 years been on Hydrocortisone a corticosteroid. Without this medication I could end up unconscious in a coma and pass away silently. Addisons also caused me to have an under active Thyroid.
unfortunately the Steroid treatment comes with side effects. This has caused the onset of various other illnesses eg Diabetes. I am an insulin dependent diabetic. I have had a silent heart attack which has damaged my left ventricle, and have been fitted with a defibrillator. Excess Steroid has caused Osteoporosis. Couple with a few other illnesses I was diagnosed with Cancer in Nov 2016.
In view of my complex medical illnesses I was deemed unsuitable for debulk surgery and considered as HIGH RISK FOR SURGERY. It was reported that I would die on the Operating Table or within a month of the operation.
Both my family and I was totally devastated and looked elsewhere for treatment. I had a successful private operation and had a partial hysterectomy where they removed ovaries and Fallopian tubes in India in September2017, defying all odds and now living to tell the tale.
Unfortunately after monitoring progress post operation they have found in Sep 2019 another mass referring to Secondary Cancer of the Ovaries. I cannot understand the logic of terming it Ovarian Cancer when I do not have my Ovaries. They are not sure where this mass has actually originated. My cancer marker is also low at 7.
The mass apparently is lying between my Cervix and Rectum. Apparently the Surgery for a second time is deemed dangerous due to the bladder or the bowels could be damaged which means I would be with a STORMA bag for the rest of my life. I am not happy at this prospect and looking for other treatments.
I am seriously considering Laser Beam Therapy, Cyber Knife Therapy, or Proton Therapy.
Can someone please enlighten me on these treatments ??
Many Thanks
Jenny
Hello Jenny and welcome to the community, although sorry to hear what you are going through and the decisions you have to make. I cannot answer your questions as I have no knowledge of this, but could I direct you to the Ovarian Group where the members of that group may be able to offer some advice. Click on the link to get to the group. You can then join the group and start a new discussion. It may be an idea to copy and paste your above post in the group to save typing it out again. You may also like to do the same in the Ask a Nurse section where you should get some expert advice. I hope all goes well. Best wishes.
