thanks for replying so quickly. I left the forum only recently feeling it was time to move on nearly 3 years post hysterectomy. I had a routine pelvic/abdomen scan 19th Feb and as usual no results for weeks. I usually have to chase the results. Rang consultants sec last week as it was 5 weeks who said letter was probably in pile waiting to be signed but then said no it wasn't so wouid chase miss Kingston the surgeon for the result. Got a phone call this morning asking me to go into clinic Friday 11am and wouid I take someone with me, I know from experience that always means bad news. That makes it 6 weeks so I assumed everything must be ok. Ironically I waited to book a family holiday in Scotland in 5 weeks time and felt it was safe to do so. It's such a shock I had melanoma checkup Monday that was ok so was feeling pretty complacent. I'm feeling angry as well as worried at the time delay and my brain just gone into overdrive on how serious it could be. I'm not saying anything to people at this stage until I know and there is no one to take to be honest. I do have friends but none of them have ever had cancer or know anything about it. I prefer to go on my own anyway I'm used to that. but I'm feeling very scared. I've been feeling so well probably better than I ever have and I suppose rather invincible! It seems I left the forum too soon! I always had trouble emailing on here and never seem to be able to start a new one just have to keep replying to incoming. I'm sorry I didn't ask how you are I hope your treatment is still working.
oooh. That’s not fun. I really hope you are jumping to conclusions but I can see how the request to bring someone along makes that seem unlikely. Is there really no one you can take? I think it doesn’t matter if that someone has no experience of cancer. It’s important to have someone who will listen and who will bear witness to what gets said.
I wonder will it help to share my experience on first recurrence of womb cancer? I had a scan every three months post treatment and all was well for the first two. By the third, the scan had picked up an enlarged lymph node. This was June 2015. The registrar said it was too small to trigger any action but needed monitoring. It could be down to a tummy bug as it was behind my stomach. Three months later and it had grown to 1.5cm so the consultant was pretty sure it was the cancer back. It was too difficult to biopsy so he proposed a PET scan to confirm it was cancer. So another wait. It was not until the new year that I had any treatment to what proved to be a recurrence in a single node - highly focused radiotherapy called SABR.
So the lesson from this for me is that although things felt very urgent from my point of view, the investigations and planning and implementing treatment takes time. Things may not be clear cut.
Hang in there. Let me know what happens on Friday.
Thanks Daloni. It's such short notice and all my friends have such busy lives. I'm an old hand at these appointments after 2 cancers. I adopt the same mantra as you prepare for the worst and hope for the best. I'll let you know how I get on.
