“A SiT’s Progress”

FormerMember
FormerMember
  • 369 replies
  • 27 subscribers
  • 52650 views

My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • FormerMember
    FormerMember in reply to FormerMember

    Never been early for anything in my life!!! One of the many benefits of privilege...

  • FormerMember
    FormerMember in reply to FormerMember

    Good news, they are really determined to keep you going - let’s hope it all works as planned.

  • FormerMember
    FormerMember in reply to FormerMember

    Thx Maz - Now... let's see if we can get Norbs into some more trouble - although he does most of the hard work himself Hahahaha!!!!

  • FormerMember
    FormerMember in reply to FormerMember

    We don’t need to do anything to Norbs - we could give him some rope perhaps...

  • FormerMember
    FormerMember in reply to FormerMember

    I think the line in the sand has been crossed. How could you Maz?, I can see how SiT would but you Maz, I am shaking my head in sadness. ( Can't shake it too much, been dizzy for a couple of weeks)

  • FormerMember
    FormerMember in reply to FormerMember

    I’m not well you know ...

  • FormerMember
    FormerMember in reply to FormerMember

    A man's excuse Maz, I am sure you wouldn't want to use that, it will demean you.

    Funny thing though, I'm not well either.

  • FormerMember
    FormerMember in reply to FormerMember

    I’m sorry Norbs, I seem to have a knack for upsetting people when I think something is funny - I promise not to be so inconsiderate and easily led in the future.  Will you forgive me?  I blame Simon ....

  • FormerMember
    FormerMember in reply to FormerMember

    Funny that - I blame me as well!!!! 

    & talk about not well...

  • Glad that it looks like getting the bike will be worthwhile! Norbs is shameless though! 

    Sarah 

« 5 6 7 8 9 »