“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • FormerMember
    FormerMember in reply to FormerMember

    How nice to be part of this kind, considerate extended family!

  • FormerMember
    FormerMember in reply to FormerMember

    Needs be as needs must Norbs - just sayin'...

  • I wasn't aware of any more restrictions on ebikes than on pedal bikes, as long as the assist is restricted to 15mph.

    If the assist takes you above 15mph then it has to be licensed and taxed like a motorcycle. 

    Sarah 

  • FormerMember
    FormerMember in reply to Salis

    And you are not allowed to comb your hair or do your nails either. 

  • FormerMember
    FormerMember in reply to Salis

    I'll take 15mph - WAaaayyyyYY better than 0mph or my snails's pace walking (shuffling...)... Haha

  • We have 2 ebikes, one is a cargo bike for shopping, but it can be adapted for two small children or one adult passenger. If I become unable to cycle I'm going to get my husband to get the conversion kit, I've not told him yet. 

    Sarah 

  • Hi Salis

    I can't walk because the pressure on my spine doesn't allow it but I can cycle. The ebike sounds great. A cargo bike, what's it like? A panier either side? 

    Tvman xx

    Love life and family.
  • Here is my husband on the e cargo bike, it can also take a big crate above the back panniers, I'm 5 inches shorter than him, but the seat is adjustable enough for either of us to ride it. 

    Sarah 

  • FormerMember
    FormerMember in reply to Salis

    That's marvellous!!! I'm looking at the VanMoof S3 which seems really well designed for getting around along with excellent security etc... Don't need fancy or super fast so if the Doc (starting RT Brain tomorrow) says I have poss more than 3 mths I will make my purchase....

    Thx Salis

  • There are places near us that will rent ebikes out for a few months, not sure of the costs. 

    Sarah 

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