My apologies for my recent absence from our little community – there are two reasons.
Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…
Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…
And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…
It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…
Much Love & Huge Hugs
Stay Strong
SiT
That is my cup of tea, staffies. Funnier than SiT getting locked out with 6 foot of snow and a couple of polar bears circling.
And how come my mets don't elicit big sympathy from the women on here re the same SiT.
Thx OBS
I will have a read later when I can't sleep as per usual...
Thanks SiT, do you remember when we supported each other back in the good old days.
Anyway, had a nice chat with Pet, lovely cocoa, lovely home made biscuits, lovely person, didn't mention you at all.
So... Just sent my lovely little car off to my mechanic friend who is graciously going to try to sell it for me and I will be surrendering my DL later...
I don't know how many others have had to do this but it feels just awful... The last bit of proper independence away on it's toes...
Will speak to onc next Weds - if he gives me a reasonable prog I'll get myself an e-bike!!! HA! Terrorising the world at 28mph!!!
You're not too far away then Norbs! Hahahaha...
Stay Strong
SiT
Its not a lot of fun driving these days SiT but it is an aggravation not to be able to jump in a car whenever. If you are not stuck out in the woods like I am then I think you can get used to it, once trains, buses and cabs are safe again.
I had a couple of hip replacements and other ops with months away from a steering wheel and it was a treat getting other people to ferry me around. My wife didn't want to drive me (or two)as she accused me of telling her how to drive, as if I would risk that?
Get some spare batteries and you can be with me in a month! (Or two)
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