My apologies for my recent absence from our little community – there are two reasons.
Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…
Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…
And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…
It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…
Much Love & Huge Hugs
Stay Strong
SiT
You better have more than 3 months Simon - couldn’t imagine this group without you - positive thinking please xx
Aww Maz - Really sweet but kind of out of my control....
We'll see what my onc says in the a.m.
Nighty night
Good luck for tomorrow SiT ...fingers crossed!!!
Don't be selfish SiT , get the bike and give it to me if things don't go as planned.
Now my thinking is that after a few quid splash out you really would find it difficult for think of me profiting from your demise. That will give you another year, after which it will not concern me. Give those tumours the SiT treatment today, the full on job.
I will leave your adoring female audience to send the hugs and kisses.
Just thinkin, just saying .....
Crikey!!! He wants my bike (which I have yet to buy...) and I'm not even toast yet!!!
Meeting with Onc this morning went well... Plan is to have my 15th atezo infusion next Thurs then 10 zaps Whole Brain RT over three weeks starting on the 9th Feb and then go straight on to the chemo/immuno combo a few days thereafter. They made my mask too and that's marginally less nice than an MRI...
If successful in doing for the BM's then there could well be a fair bit of time left, if not then less than three months...
Norbs - you'll need to be looking out for a REALLY big parcel around the end of April... (hahahaha!!!) I'm only putting one second class stamp on it so you'll have to pay the rest!!!! (loadsamoney...)
Stay Strong
SiT
Don't worry about tempting providence, this is Really good news. I have always believed the effort the oncs put in reflects their views of the outcome. This is plenty of effort.
Would still like to see a picture of what I might get from you, just being practical and just sayin .......
Let's wait for the howls of outrage from your entourage!
Well done SiT.
Pet and Peggy24 have been longstanding supporters of mine, why would they listen to a fly by night, even if he is an Earl? Bet you didn't want that to come out?
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