Another sleepless night

FormerMember
FormerMember
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Hi I am sat here wondering whether it is just me or do others struggle to sleep at night. I spend my daylight hours feeling exhausted and then at night I can’t sleep. I feel itchy all over and can’t stop the feeling. I am not sure whether my liver is playing up again or if I am just over tired. 

Unfortunately  being unable to sleep provides the opportunity for all the worries and doubts to invade my head which makes the nights long and difficult. Any advice?

  • Hi Millie, it sounds like the kind of night you and Tori will never forget! Also so uplifting! Amazing, so glad you made it!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • FormerMember
    FormerMember in reply to anndanv

    Hi Annette & tvman, Scotland does have move more, there is one in Edinburgh which is in conjunction with the local council leisure centres, I did look at it last year but I live outside Edinburgh.  But luckily they are just setting it up in East Lothian where I live - tvman, I was thinking about doing it but have been a bit reluctant since my terminal diagnosis, I find it really hard to start new things and meet new people.  I don’t know why as I was always good at socialising and doing things before but I struggle now,I hate explaining to new folk my situation.

    however, tvman, your classes sound so lovely I might think about trying it.  I’m really struggling with fatigue and I think some gentle exercise might help!

    so thank you for reminding me about it, it might make me get off my bum and do something, love heather xxx

  • Thanks Heather, Yes sorry there are a few classes in Scotland but just not where I live, which is just 12 miles from Glasgow. There is a great Maggie Centre on the grounds of Beatson Cancer hospital but unless you have someone to drop you off then pick you up, you can't get parked anywhere near the building!

    Heather, never let your diagnosis stop you from joining something new! It's not easy but try to focus on the living you still have ahead of you and not the dying. We are all dying but this diagnosis brings it to the front of our mind! Try to push it to the back! I got my dx in 2013 and I could have wasted a lot of time "waiting to die"! I'm so pleased I didn't! There are so many new drugs out there, even the doctors can get it wrong! You go for it. When you say you don't like the thought id explaining to new people about your dx, you can do what I do, "I don't tell them"! Why would they need to know?

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • FormerMember
    FormerMember in reply to anndanv

    Ah,I’m from Glasgow myself, originally.  The Maggies in Edinburgh is also amazing but yes we have the same parking issues! And it is an hour in the car to get there, so I have to ration my trips.

    you are so right, I will try to take your advice, I think I am just a bit glum at the moment as pains are getting worse, so then I think, when I am tired, “why bother”.....but I know you are right, so I will give myself a talking to!

    thanks you so much for your advice x

  • Hi Heather, I was pleased to hear your going to try to think more positively about living! I think the two worst things to deal with, apart from the diagnosis itself is the pain and the fatigue. I hope you are getting help with the pain and as far as the fatigue is concerned, you just learn to pace yourself and rest when your body tells you to. Why don't you send for the move more video, you can order it on the information and help tag at the top of the home page. Then if they do start up a class in your area, you will already be familiar with the moves! Good luck!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!