hey everyone,
so i I went to Princess Margaret Cancer Center in Toronto, and was basically told the same thing as I was told by hematologist here. Even though I’m stage IV they wait for more symptoms before doing treatment. I felt again I wasn’t listened to and that the dr I saw was friends with my Hematologist back here. I mentioned that I felt perhaps the cancer was slow growing in the beginning but believe it changed to more aggressive at some point since I went from two abnormal glands to multiple in a six month span. Well I had only been home a week and was doubled over in pain. My aunt brought me to the ER they did a CT scan and from my previous CT back in April I now have Multiple Vertebrae showing degenerative disease, progression of glands in my pelvic region, new glands in my back, and increasing size of lymph nodes in groin area. They report says that it raises concern of metastatic disease or lymphoma umm you think maybe I have “Mantle Cell lymphoma”. I talked with my hematologist receptionist to see if she got the report and are they going to do anything as of yet. Supposedly the hematologist is discussion the situation with some other Dr. Please tell me they finally get it, that they will start treatment soon. I hate this let’s wait for more how much more do they need to see? Until I’m paralyzed? Or That by the time they decide to treat it will be futile! I mean okay I want to wait until August 3rd now for the simple reason that’s my Wedding day! But let’s have some direction!
