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Thanks HarryB, thing is she is so determined to go home to be with her dog, my sisters and I feel we cant go against her. We want what is best for her, and being in her own home is what feels right at the moment. We know our time is limited and up until yesterday, we were feeling awful at having to find a nursing home. She surely has a right to have what she want doesn't she! This must sound awful but she wants to be at home, and the PCT says they will fund her care, so why cant that be in her own home? Our middle sister is a social worker, but lives in Germany, but has given us the questions to ask the discharge team (it helps having an informed person onboard). Being the youngest, I can prompt but feel I have to step back and let my older sisters take control.

Well Jo, if thats what she wants, thats what she should get, providing she can be safe. Just keep pushing for the full assessment and full care package. If you can't get 24 hour care, I'm sure with some organization, you can get a rota going in the family, to cover any brief times the nurses aren't there. But the 1 hour a day is worse than a joke! Its ridiculous!!
Hope you get it sorted how you want it. Have you tried looking on the Get Support tab at top of page? Dont forget there are the Marie Curie nurses as well.
Love HarryB x

Hi Kerys,

I am really sorry to hear about your grandparents - but thought I would reply to your post as I too am only 20 years old and have recently found out that my father has lung cancer. I am also at university which is hard, but fortunately am close enough to commute to uni for the remaining couple of weeks of term. Anyways, just wanted to say that it would be really nice to chat to someone else my age that is going through something like this and hope that me messaging will help you like you hope.

To everyone else - I have been logging on to this site for a while now reading your posts but never replying...Just wanted to say I am sorry that we are all here for the same reason but it is lovley how supportive everyone is to each other, and I wish all of your affected relatives all the luck in the world. Cancer is awful and I never truley understood the impact it can have on those affected until now. Hope to speak to some of you soon.

Take care and all the best,

Holly xx

im so confused,my husband was told 2 weeks ago he has primary lung cancer which has spread to his lymph nodes on chest and both arenal glands,is this stage 4 ???..what does it really mean?,we were told there is no cure for him,but on the steroids he is so active and healthy?,niether of us can really believe he is that ill,he starts chemo on monday ,to ease symptoms,which are breathlessness and hoarsness,other than that he is ok,could they be wrong ???

Hi,

I'm new to this. My mum was diagnosed with advanced colon cancer last month. It has spread to her lungs and lymph nodes already and there are no surgical options. She is probably too weak for chemo or radiotherapy. I am feeling overwhelmed and a bit lost. She won't eat and is distressed (as am I).

dear anniehy, im so sorry, your mum has been diagnosed with advanced colon cancer, if you go to the left hand side of the page and click on cancer types, it will take you to others in a similar situation to yours, sorry i cant be of more help! i wish you well in your search, you could always start up your own thread, it would bring others to you, good luck jackie x

Hi everyone

Wow I feel so much better finding this website. I first posted about a month ago when my dad was initally diagnosed with non small cell lung cancer. Since then I have made a few friends who I try & keep regular contact with. I'm still searching for information relating to my dads diagnosis so that I can understand his prognosis better and i'm still searching for information that could help to keep him as well as he is now. I've noticed this week he has been quite hoarse which is a worry as i'm wondering if this could mean its spread or if its just one of those things that happens. His appetite isn't great but he is still managing a decent meal, just not as much as he used to although I am worried too about my mum. She is diabetic and should be eating frequently but since dads diagnosis and more since the oncologist told us his prognosis neither of them are eating as they should or sleeping well. Dads on sleeping pills and so is mum.
I wish in a way I could turn the clock back to the day before my dads last appointment with his oncologist. It still makes me feel quite annoyed about the way they treat him. First appointment with inital diagnosis they told me dad not to worry, they knew which cancer it was and how to treat it, 2nd appointment they told him he had months rather than years to live. Of course its changed everyones way of thinking but I've found this site helps me to be more positive by reading other peoples success stories. The more I read the better it makes me feel.
I've tried to find a thread specially for the type of cancer my dad has but as yet I haven't found one. His lung cancer is non small cell but that has 3 sub types, dads is Squamous carcinoma.
I just wanted to say thank you to everyone who gives support, advice and friendship when we need it the most

love to everyone on this site

Jacqui xx