Breast and bowel synchronous cancer primaries

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I had a single mastectomy in December, recovered well and as it was in 6/17 nodes I had a CT scan. This showed thickening on my bowel. Following a colonoscopy they confirmed it was cancer. After a long 2 week wait I’ve been told it’s bowel cancer. So rather than just dealing with breast cancer, I now have bowel cancer to deal with as well.

I see my oncologist on Monday but so far I know it’s chemo for the stage 3 breast cancer then surgery for the bowel cancer. Radiotherapy is planned for breast cancer but I’m not sure if that’ll be before or after the surgery.

Fortunately the cancer is contained in the bowel so they feel comfortable leaving it until my breast cancer is dealt with.

I know it’s incredibly rare to have 2 synchronous primaries, but I also feel blessed it’s bowel cancer & not a spread of the breast cancer.

I'm wondering if there's anyone else has experienced breast and bowel primaries at the same time?

  • Hi 3Kittens

    I'm Daisy53 one of the Community Champions on the Breast Cancer and the triple Negative Breast Cancer forums and I help out in some of the other forums if I can. I'm sorry to hear that you have been diagnosed with bowel cancer as well as breast cancer. If you haven't already maybe put the question into the breast cancer forum and also join the Bowel Cancer forum to ask the question there and hopefully you will find someone in either of those forums to give you an answer to your question.  Here's the link for the bowel cancer forum: Bowl cancer .

    Wishing you the best of luck with your treatment.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi 

    I’m in a similar position I was diagnosed with primary  bowel cancer and sent for a scan , and following that they found a lump in my right breast , anyway had a biopsy and 7 weeks ago was in hospital after major surgery to remove my rectum and part of the colon when I was told I also had a primary breast cancer . I had a lumpectomy and harvesting of lymph nodes yesterday .

    im lucky as the colon cancer hadn’t spread and the lymph nodes were clear so I’m in complete remission from that , but the breast is triple positive and they would normally give chemo before surgery in my hospital but couldn’t as they thought my gut hadn’t healed enough and my general strength wasn’t good . I’m now waiting to find out what the lymph nodes show and what the next stage is going to be .

    its tough enough with one cancer but I’ve felt totally overwhelmed with the diagnosis of 2 and the surgeries that were needed so close together .

    im sending all my love to you , stay strong , we can do this 

    xxxxx

  • I’m so sorry, it’s such a lot to process.

    I can’t help with information about bowel and breast cancer but I do have two synchronous cancers: lung and kidney. 

    I had a lobectomy two weeks ago, robotic surgery. They took the top lobe from my right lung and harvested lymph nodes for testing - not got results yet.

    Ive to wait for my lungs to recover to have my left kidney removed. 

    I had no symptoms and it was an incidental finding so I’m fortunate both primary cancers were found. 

    I can say that it feels like a huge mountain to climb, and it is for you too. My only advice is to not think too deeply, take one step at a time. Use recommended sites for information and take questions to appointments. 

    I’ve also found my GP useful today, they’re still there for us too. 

    Happy to chat anytime. 

  • Hi there and so sorry to hear this I am the same I had emergency obstruction bowel surgery back in March turns out to the blockage was a tumour then confirmed bowel cancer but before I could start chemo after my surgery they then found shadow in my lung turns out after a lot of tests scans investigations and waiting that I also have lung cancer separate primary cancers same as you I was 49 when they said I had cancer not long turned 50 and my life is in total turmoil honestly I started treatment for lung cancer last week 2 chemos and immunotherapy turns out I had a bad allergic reaction to immuno so my treatment was stopped so with preventative measures put in place before I’m now having treatment again next week just praying my body will let me have it as I had stage lll bowel cancer and stage llla lung cancer I have 3 kids two still young at home my hubby works part time but I just feel like I really need him with me all the time so scary and living life as normal as possible for my kids is so hard I just think keep going and taking a day at a time is all I can do feel free to chat whenever I’d welcome it tbh and hoping the very best for you xxxxx

  • Hi Bettyboop,

    So sorry to read your post. It sounds like you’ve been plunged into this cancer journey too. I’m constantly stunned that I have two primary cancers and knowing that I’m to go through everything twice. I’ve had lung surgery 4 weeks ago. On Tuesday i’m going back to see the surgeon for the results of the lymph nodes and analysis of the tumour. I’m staying positive and not thinking about the possible scenarios. My older daughter is taking me as my husband can’t come as he’ll be working then looking after our 16 yr old daughter who has a life-limiting condition. 

    Im waiting for the drs to say I’m well enough to have my left kidney removed. I have lots of niggles knowing that tumour is growing away and possibly spreading as time goes on. 

    Still trying to take it one step at a time, deal with one thing then the next and not imagine what might happen just go with facts as they’re made clear to me. 

    I feel for you with children at home. My two older children have their own homes, husband and partner and children so I don’t worry about them apart from suddenly not being able to provide day care and school pick ups. It’s my complexly poorly 16 year old who worries me as she needs round the clock care. 

    Im in my fifties, still feel like I’m thirty! Joy Totally thrown by this sudden nightmare! 

    Happy to chat whenever, good to talk to someone who understands. x

  • Hi there Florri

    aww so sorry to hear about all your journey it’s so hard I know and it’s great to have someone who actually can relate like family are great but I don’t think they can understand truly as they don’t have it ya know and with the kids it’s truly hard and you too I imagine with a 16 year old who needs constant care and I have literally not long turned 50 and I’m like you I feel thirty I don’t look it but I feel it lol and this 2 cancer news is like a freight train hitting me tbh I truly can totally relate to how ya feeling and thinking and yes it sucks so bad I had my first treatment last week immuno and 2 chemos didn’t get to have the chemos as I had a bad reaction to the immuno which we are gonna try again next week so I’m afraid of having that again thought I was having a heart attack tbh was awful but it gotta be done so something else I just gotta do it becomes endless don’t it and sure chat away ask anything you like and any help or anything I can give even if it’s just a ear and some understanding I’m happy to do plus I love a good old chin wag lol hope to hear from you again xxxx