I feel quite embarrassed mentioning this but it’s eating away at me, there’s SO many people going through so much more. I was diagnosed with ALL when I was 18 months old. Long story short I survived and am now 29 with a beautiful little girl. However since becoming a mother the anxiety of my cancer returning is eating away at me. I’ve had various scares in recent years which of course has added to this. But has anyone else experienced this? Being a “cancer survivor” is amazing and I’m beyond lucky but the mental aspect of having that label is haunting me. I’m too embarrassed to bring this up with loved ones in case I sound over dramatic or weak. Pleas tell me I’m not alone
HI SmbALLcf5613 and welcome to this corner of the Community although I am always sorry to see folks joing us. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Acute Lymphoblastic Leukaemia (ALL) but I was diagnosed way back in 1999 at 43 with 2 rare types of T-Cell Non Hodgkin’s Lymphomas the first in 1999 and second in late 2013 the second taking me Stage 4a so although my blood cancer ‘type’ is different I do appreciate the challenges of this journey rather well.
Even although I am coming up to 10 years out from my last treatment and my first type of NHL is still seen is incurable but my team say it’s fast asleep so I just don’t go around kissing a princess.
The post treatment world is all about not letting our cancer journey define us….. we need to define how we live.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
We also have s dedicated Acute lymphoblastic leukaemia support group on the community.
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups….. the one I attend does have a person with ALL in it so worth checking.
Always around to help more or just to chat.
