Hi all, never posted anything on here but I'd like some input from people who might understand my dilemma! It's only a small decision, but it's driving me crazy!
I have stage 4 metastatic breast cancer and have been taking Ribociclib and Letrozole for the last 3 years. Doing ok on these, but recently the side effects seem to have become a bit more noticeable....whilst they are a nuisance, I have dealt with them as best I can and accept that they're part of my treatment. The side effect bothering me most right now is my hair and scalp. My hair has thinned quite a bit, which isn't great because I only had fine hair to start with. But my scalp is continously itching, I'm scratching throughout the night so I'm not sleeping well, the condition of my hair has changed a lot, again accept this is due to my treatment, and I'm trying to moisturise my scalp as much as possible to keep the itching at bay, but can only do this at night because I look an awful mess with lots of goo on my head! I'm not particularly vain but I'm trying to not give in and make myself look the best I can, but I'm finding this quite hard to find a solution! I wear my hair quite short now, and as it's fine, I have to blow dry and style it for it to look any good, this alone is probably not helping my scalp....the other option is to buzz it off and wear a wig when required. I have played around with wigs and whilst it isn't ideal, if it stops me feeling disheartened about my crap hair, I'd probably be ok with it. I've asked my family, they think I'm crazy for even considering it, always telling me there's nothing wrong with my hair, it looks fine etc....they don't understand how the whole hair thing is bringing me down. It sounds really pathetic to be moaning about hair when I have other things to worry about, but I don't know how long I'm going to be able to get my hair and make up on, and go out feeling ok about myself.....my mobility is becoming affected now, my oncologist gave me roughly 3 years from diagnosis, and I've passed that so I'm feeling quite upbeat most days....and it's no big deal in the scheme of things, but I have to do something! Any ideas or suggestions? Or any ideas to stop the itching, so I can sleep?? Thank you all xxx
Hi there. The hair thing is a big deal. I think partly, or even mainly, because it marks us out as people with cancer. I have had lots of chemo but only twice have lost my hair. The first time was right at the beginning,at diagnosis, when I was trying to be tough and take it all in my stride. The second time was a couple of years ago and that time losing my hair really did matter. I was on weekly taxol and lost it gradually over 2 months, I eked it out for as long as I could, using Buffs to disguise the bald patches. I was very sad when it had to go. Then I wore a wig in public (the freebie you get on the NHS). Hated wearing it but it was like a kind of camouflage. I could have gone for the cold cap but couldn't face the discomfort. My scalp was incredibly dry and flaky, I used Tisserand rosemary hair oil which was fantastic, but it's highly fragranced and might not be suitable for you but you could check it out. It makes your hair lanky though so more of an overnight treatment with a Buff or scarf to protect your pillows. All the best x
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