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FormerMember
FormerMember
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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

  • FormerMember
    FormerMember
    hi im megan and my mum has cancer. i dont really know what to say now im writing...... i think i need to just be able to talk and get advice from ppl who know how i feel. im 22 and mums been battling cancer for a good 9 or ten years now. recently things have changed. as its terminal we know the inevitable. she has tried lots of different chemos and more recently a new drug. it was quite intense for what she was used to. the treatment side effects wer worse than the disease. to cut a long story short mum has now decided to not have anymore chemo which we back 100% but im really not coping at the moment. i live with mum and dad and my dad is going through his own stuff at the mo. i dont know what i will do without her..... im not ready 4 this. its selfish i know. im so depressed. i just dont know wot to do anymore....... just want to say thank u 4 the replys xx
  • FormerMember
    FormerMember

    Hi Megan,

    I'm so sorry to hear about your Mum. My Mum was diagnosed in July 08 with colon cancer which had already spread to a number of her bones. Mum had been having chemo up until December, but since new year has taken quite a turn for the worst. Were told at start of January Mum only had weeks left. It is very hard to deal with, but since coming on here I've realised we are far from alone. This site has helped me loads so far.

    Since we found out Mum's diagnosis I've been off work looking after her. My advice is to do what you feel is right for you. I've enjoyed going shopping trips, going for lunch and watching girlie films with Mum- in between all the treatments. Mum is now comfortable and not in pain, and that's the most important thing.

    I have my fair share of good, not so good and really bad days - but if you're feeling down, there's normally someone on here who can pick you back up again.

    Take care,
    Audrey x

  • FormerMember
    FormerMember

    Hi Megan

    I'm so sorry to hear about your mum. I was only 23 when my mum died, so I know how difficult this is for you. If your mum has a Macmillan nurse, get in touch and ask her to get you some help. You should be able to get a few sessions with a nurse therapist to talk things over with. I think we areall a bit reluctant at first to talk or to have counselling, but many people find it very beneficial. Other than that, I hope you can still spend some good time with your mum like Audrey says. Do as much as you can together, talk, laugh, cry whatever. Your time with her is precious
    Sending big hugs
    HarryB x x

  • FormerMember
    FormerMember

    I'm new to this, don't usually use this type of medium to express what I want to say so I apologise if it isn't in keeping with the rest of the discussion, I can't find where I should start from.

    My husband (53) was diagnosed with oesophageal cancer in september 08, he was told at first he could have an op and all would be well - wonderful. Then he had a PET can prior to op - sorry you can't have an op you have a 2nd tumour a little higher up and we can't remove that much tissue. Lets try Chemo - he had 3 lots of EOX then a scan, sorry it's not worked. What now? The options are 5FH or a research programme. He opted for 5FH, he should have his next scan around easter time. I don't know how he will cope if it doesn't work out this time. Radio will only keep him comfortable and not cure him.

    Could there be anything else out there?
    wifeofsufferer

  • FormerMember
    FormerMember
    hello,



    I am sorry you have had to come onto this site, but you will find a lot of support. If you go to the left hand side of the page, under latest tags, click on 'cancer types' then follow instructions from there, you will find a group of people who have, or are taking care of someone with the same type of cancer. You will get a lot of help and advice. Also, if you fill in your profile, by clicking on the left side on 'profile' fill it in, people will be able to know your story without you having to repeat it all the time,m you only need to fill in as much as you are comfortable with.

    xxx
  • FormerMember
    FormerMember
    Hi you would be more than welcome to join us on another thread, "New dads got osophegal cancer" there are lots of us on there and hopefully we will be able to offer you some support and some have been/are in a similar position. All the very best, Rose xxxxxxxxx
  • FormerMember
    FormerMember
    Hi
    As Rose said please join us on the other thread if you would like to. My husband has OC as well - there are so many ups and downs but at least your husband is still going ahead with his treatment, I really hope it works for him this time. If you read my biography you will see where we have got to - everyone is so different it's hard to say what will happen.
    There is lots of support and advice here so do keep posting.
    Judy xx
  • FormerMember
    FormerMember
    hi my husband has been diagnosed with terminal leukaemia i have taken some time out of work to care for him is this the right thing to do? it will have a disastrous effect on our finances i know money isnt important at a time like this but i worry about paying our way
  • FormerMember
    FormerMember

    Hi jockdawn

    So sorry to hear of your husband's diagnosis. Only you can decide what is the right thing to do. If you give up work, it will obviously reduce your income, so have you looked for the benefits you can claim? You can ask your Macmillan nurse to sort out the benefits for you, or you can look on the Get Support tab at the top of this page and EDIT* go down page r/h side to financial help, and download the booklet.* If your husband's d/x is terminal, there is more help available usually. I should think you will get DLA at the higher rate, there may be other payments you are entitled to, such as carers allowance.
    If your husband and has any private pensions, depending on the length of his prognosis, you may be able to draw them out in a lump sump if you need to.

    This is a great site with lots of support. It is helpful to talk with people who are suffering similar problems, so welcome even tho the reasons for being here are obviously very sad. I hope you find friendship and support.

    Love & hugs HarryBarb x x

  • FormerMember
    FormerMember
    Hi everyone, I'm new to this site. Last may at the age of 41 I was diagnosed with bowel cancer. As you can all imagine, I was devastated. However, I am a fairly strong person and I have worked in the care sector all my life and nursed lots of people with cancer. I thought I was equipped to deal with it as did all my family and friends. The result was they all said, It's Chelle, she can deal with it. Trouble is, I haven't. My family and my husbands family have all called on me over the years to care for them and I have nursed several members of both our familys through cancer. I know this sounds selfish, but I feel like none of them have tried to help me. I dont mean with the physical side but the emotional side I attended all my treatments on my own and continued to work as long as i could before i became to tired to do so. My employer got fed up with me taking time off for hospital appointments and came up with some lame excuse to sack me and my friends all dropped off one by one. I dont blame them because they dont know how to react to this disease. I look so different from how i was a year ago people barely recognise me. It's nearly a year on and I have just been told I am in remission. I should be happy, but all I feel is this great sense of darkness and I don't know why. I haven't spoken to anybody about how I feel or how I have felt throughout this whole experience. I feel lost.