Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Hi Marc, Welcome to this thread and we'd be very happy to have you join in with discussions here, and don't forget that on Fridays we Dance the Crap out of Cancer.
Hi to Everyone, Liz I know you must have had good news because everyone is so happy, but I can't find your post anywhere. I just want to add my best wishes to you and send you big hugs (((((Liz))))).
Hi Christine, this new site does take some getting used to doesn't it? None of us likes change, and after cancer we have to be careful and wary of change because we don't have the stamina to get stressed do we Lol? Well I know I don't because I fall asleep as soon as I'm even a little bit stressed. Having said that, I'm sure we'll get used to it and we can help direct each other I think. Hope today is a good and sunny day for Everybody, Crystal xx
hi Liz, yes, the new site is hard to use. I still have not been able to find my friends list or previouys posts, although ones from last year are up!! How are y ou. If I don't answer, its because I am lost!!
dear M arc
so sorry that you need to find yourself here, but welcome.
There is a thread called 'BOBJK my diary of kidney cancer' which you may find useful; if you look under @forums' you should be able to find it. bob has been fighting kidney cancer for some time, and I am sure he will chat with you and help you.
sue x
Hi everyone
Liz, I hope you has a good Car Booty today.
Mary, thanks for the advice......I'll contact Mac and try and get them to retrieve my Bio.
After hearing from Mary, Liz and Crystal, Im starting to feel a bit better about this new site. I had the feeling that it was just stupid me who couldn't cope with it. On the other site, it was so easy to find and follow the treads that you found supportive, interesting or entertaining, but this one is just such a pain in the butt that I feel it just might put people off when they try to find support......but I hope it doesn't, and all the people who like to follow and/or contribute to this tread will continue to do so.
HI MARC! like many have already said, were very sorry that you are in need of this site, but you are very welcome to join us whenever you feel the need. We are all very understanding and supportive of one another.
I had a good day today. Went to Bradford On Avon for the day..........lovely. Had lunch in a lovely 16 century pub then came home and spent the evening with some good friends. Trawled through all the different European Christmas Markets on line, and we finally settled for the Berlin ones, so we have booked flights for a weekend in Berlin on 5th December. Haven't booked any accommodation yet but I'm sure that wont be a problem.
I hope everyone has a good nights sleep.
Loads of love
xxxx
Its one in the morning and I'm very very happy but very very tired.
Mac Admin have sorted out my Bio and diary updated which I've now transfered onto my Blog which I've called 'Dear Diary'. YES! I know its not a very imaginative title but thats all my brain could think of.
I'm of to bed now.
Goodnight everyone.
xxx
Good morning to you all
well i do hope you all have had a nice weekend mine was OK,s well i have sent a message to Macmillan's this morning asking if would be able to find out where all my detail's have gone plus my
groups and everything else that has be lost . Christine you luck thing you will enjoy the German Christmas market all i can say is make sure you rap up well as it gets pretty cold at that time of the year .Well i,m of to the gym this morning so i,m hoping that lovely paul will be there he was on wednesday.
got to go now so speak to you all later much love liz xxxxxxx
Morning, liz
Glad your weekend was ok - mine was very busy washing cars, clearing out the shed, washing and ironing, etc- back to work today for a rest! not!
sue x
Hi everyone,
Christine, the German Christmas markets sound lovely hope you enjoy them, im glad mac sorted your bio out for you, mine was missing as well but i emailed them and its back now.
Liz, i did re-add you as a friend but im sure mac will put all your info back now you have emailed them, i dont like this new site either the old one was so much easier to use, but i suppose we will get used to it in time, good luck at the gym today and i hope that your lovely Paul is there.
Sue, im glad you enjoyed your birthday on Saturday, hope you saved us some cake haha.
Hope everyone else on here is ok, thinking about you all with love and big hugs.
Dianne xxxxxx
Hello to you all, most stuff is coming gradually, I too have a profile and a blog, but still lost the ability to see p/ms, hope they are still working on that, though!
Went to a fund-raising dinner Saturday night, was home at 4am! The money raised was just astounding! Slept well last night and feel much better.....Caz has unveiled a wonderful portrait of herself on Twitter, with Rolf Harris at the other side of the portrait, it will become the cover of a CD, more to follow! Just keep patient and you'll all learn more, the CD will get recorded in October, worked on and we hope might be out by Christmas!
Moomy
Good morning to you all
Well i,m not at the gym today i,m of to see Nigel to continue my Journey so i,m so looking forw\ard to that . Well other than that not much planned for today so i do hope you are all as well as can be and i hope you all have a nice day today by the way i had an e-mail from maccmillans saying that they are dealing with my problem.
much love liz xxxxxx
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