Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • Liz, good to see that your check-up went ok, pity about the wait, it's always wait, isn't it?

    Sue, if you have any of the white stuff like us, 6 inches! take care, cos it's now starting to freeze ans we have a -6 forecast! (am a bit concerned as son is on call now for the whole weekend, he is in Northants, also very bad!) Am glad you are doing ok and enjoying the exercise!

    Christine, I wasn't born or bred in Yorkshire, neither was hubs, but we do still enjoy brass band music. Caz was originally in one, of course but when she went to college she wasn't allowed to be, as it changed her sound too much!

    Well, we went for a 2 mile walk today, hubs doing well too, I watched him carefully,( with his 2 hip replacements, dodgy back and diabetic numbness!) but he did take his walking stick, the 2 miles was an under-estimate if anything, and as it was still snowing and quite tough underfoot, it made an interesting and hard walk in the countryside, but so beautiful! This afternoon's sunset was soooo lovely! But it's icy now.....

    Moomy

  • FormerMember
    FormerMember
    This is a very interesting question. Friends are friends but as life goes on. We find our true friends- how wise- but I have noticed that when we have to explain cancer- some friends are upset with and for us and really want to help.
    Others those who hate illness in general- or just do not know what to say in such situations- say something odd or they ask , in my opinion, silly questions- how are you? Are up ? Do you feel better after the drink of tea? They do not what to say.
    Life teaches us all at different times and perhaps we only think we learn. My Mum who was so frightened of losing her husband would do anything to get out-then she made herself ill and my Dad and I knew what was happening-so he asked me- then we had jealousy-it all happened so quickly but when it happens you learn and don't expect too much. Share is special - some seem to have no illness but when it strikes- they have to deal with it.

    The word friend changes in meaning- and who cares when your loved one has gone. Some do ask, care, others say oh lets change subjects- so I think I have less friends but some real friends.

    J
  • FormerMember
    FormerMember
    Morning everyone,
    just thought i would come and say hello to you all,
    sorry i havent read back got my grandson here waiting to use computer but i
    hope you are all ok, the snow has gone from here now but its still freezing so
    i wont be moving much today, hope its not too cold where you are and you all
    have a good day, love and big hugs to all on here
    Dianne xxxxxx
  • FormerMember
    FormerMember
    Hello everyone Hope the snow hasn`t stopped the dancing. We have not had much snow in Northumberland as the rest of the country although it is supposed to reach us this weekend, so far not much at all. Although the weather did stop my son being able to visit us from down south, which was a shame as we were looking forward to seeing them. Better be safe at home than travelling in bad weather so we understood.

    I have found some family not able to talk about the cancer as well as others. All of our friends are supportive although some tend to think you shouldn`t worry about things untill it happens .

    Right from the beginning being told my husbands cancer (Mesothelioma) was not curable, my husband asked about organ donation and would that still be possible. He has already had a heart attack . two small strokes and is diabetic. We were told that they would be able to use his corneas but no other organs. Which he found quite comforting as he does photography and always says he would like other people to see what he sees through his eyes. This week at our GPs he got her to fill the form out to set this up for when the time comes,
    although we know this won`t hopefully be for a while yet.

    I am sorry if this post is upsetting anyone talking about this , but in a way it ties in to the earlier post about friends not talking about
    things. Sometimes we need to discuss things that are difficult and I feel that this site allows us to do that.

    Take care everyone love to you all. LIZBRADxxxxx
  • FormerMember
    FormerMember
    Hello everyone,
    Its good to hear from you Dianne and I hope you enjoy your family day today.
    The weather was kinder to us yesterday, so we managed to get to out
    with friends and have a lovely evening. Went to the cinema to see 'Slumdog Millionnaire' which I really enjoyed, and even had a little tear at the happy ending. Its been a long time since I've seen such a good film, Im sure it will win loads of awards. Then went to an Itallian restaurant which also turned out to be lovely. So....good film......good food......and good company, made for a very enjoyable evening.
    Im now going to have my usual lazy Sunday in bed (messing about on computer,reading newspapers ect) as I have a week full of medical appointments next week (Dentist, Bone scan, Blood tests and more holiday vaccinations).

    I hope everyone has a pleasant Sunday.

    Christine
    xxxxxxx
  • Hey, Christine, hope those jabs for India aren't too bad, Caz had hers last week as she's off just to Mumbai soon, at the end of the month I think, she has to have Hep B topped up too, has begun her course. I told her to ask about the Measles jab too, as she hasn't had it and it is increasing, but it's a live vaccine so she can't have it. She said she doesn't need to have Malaria tabs as she won't be at any risk, the nurse looked up all the advice for where she will be, just in the city itself. (just hope that's right!)

    LizB, good to see you back on here, and I admire Geoff for sorting out donor organs, good for him!

    Sue, hope you are having a good rest , now don't get too energetic with the spring cleaning!

    Liz, hope that physio is still working wonders on the shoulder range, once they start to improve its amazing how quickly they continue.

    Dianne, you came back! so good to see you post, we miss you, at least, I do.....

    JaneP, welcome to the thread, friends can get very upset but some can be just great, can't they?

    take care, everyone, love and hugs from me....

    Moomy

  • FormerMember
    FormerMember

    hi moomy .

    went for a long brisk walk this morning round our local mere with my fella , than came home and did some food prep for tea , a long soak in the bath and now watching the football .

    have one more room left to 'spring clean' but as i only have two days annual leave left am leaving that for next week .

    my friend goes into the hospice on monday and my other friends mum has just had major bowel surgery , we are waiting to see if it is bowel cancer ..
    so lots og highs and lows again ....but i plod on
    suexxxxxxx

  • FormerMember
    FormerMember
    Hi everyone

    Back to the original thread of Are Friends and Family ever enough... ('no' is my answer)

    Please have a quick look at my thread below:

    http://share.macmillan.org.uk/Share/Forums/?topic=1009525

    I cannot find a central London or local (to me) Self Help or other Support Group (and I've tried quite a few avenues so far, but not finished yet). So I'll be setting up some groups on this site with a view to getting Macmillan or maybe even myself to set up some more support groups where we can meet up in person.

    I've one more call to make then tonight I hope to be creating the new group(s).

    All the best
    Jackie
  • FormerMember
    FormerMember
    Hello Jackie
    You sound like a very positive and determined person and I hope and wish you every success with your drug trial.
    I dont live within the London Area but your local support group idea sounds very good, in theory. Im sure many people would find such a place helpful and comforting. Not too sure if it would be something that I would use, because, as you have stated, each type of cancer and each patients situtation is so totally unique. Such a place may be very helpful if you wish to get the opinion of a fellow sufferer on things such as types of chemos or other medications and their possible side affects, but what happens when someone wants personal, legal or financial advice. I dont know where you would stand if you were handing out this type of advice......I think maybe you would need someone qualified in this field. Also, where would you draw the line as to who was allowed entry to the group. Would it be anyone who has had to deal with any type of cancer, those who are cured or in remmission, carers, family or friends of a cancer patient. A mixed group like this could be very very difficult to handle and could end up causing more distress than help.

    Im sure you've already foreseen all of these pitfalls, so I hope it all goes very well, because I'm sure it would help many people.....and just being able to help one person on their journey would be a blessing and very worthwhile.

    Goodluck to you.
    Christine
    x
  • Hello, Jackie, good luck to you, but do have a good think about all the possible pitfalls, and ask Macmillan for advice too. We have a group which meets locally, for Lymphoma, once a month, under the auspices of the Lymphoma Association. If there is a similar specific cancer group for you, maybe they too could give you advice?

    Moomy