Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember

    Helen,

    have a look on the Cancer UK site

    http://www.youtube.com/watch?v=lP3eHMWFEkM

    it has some stuff on there about treatments and GVHD which may be of use to you.



    Dianne,

    no not yet, suppose they may have been busy with the site problems, will let you know if and when I do.



    Andrew

    xx

  • FormerMember
    FormerMember
    Helen,

    sorry, wrong site

    http://www.cancerresearchuk.org/

    thats the one I meant

    Andrew
    xx
  • FormerMember
    FormerMember
    This song is a bit risque about stuff but I like it anyway, it has some funny lyrics about sex - i know its early yet so please feel free so save for later - lol -

    Andrew
    xx
  • Andrew, thanks, have searched the site, and there is just one query I can raise with Caz's consultant.....ps, you didn't post the link to the sexy song!!!!!!

    Moomy

  • FormerMember
    FormerMember
    Soryy Mooms,

    this should be the one

    http://www.youtube.com/watch?v=vl5CiPqhAeI


    I hope
  • FormerMember
    FormerMember
    Ok

    Liz, Mooms, Dianne.

    i am off to do some work and sort a few things out for the hols so i will catch up later with everyone.

    Have a great day to you all and speak soon.

    Andrew
    xx

  • FormerMember
    FormerMember
    Hi to all,

    my day so far -

    I got my car back at last, it seems like ages even though i was only bereft of ot for 4 days! I even managed to drive back from town with the roof down as well in between rain showers - so i am happy, happy and more happy!

    Met up with a friend for coffee in town and he and his wife are emigrating to Australia in August (wonder if it was something I said - lol -). He has a job lined up and somewhere to live rent free from his new employer for 6 months in Sidney and i can go for a free holiday when they are settled (dependent upon this silly disease of course).

    I very nearly spent £9,000 on a watch but changed my mind after thinking about maybe going to Australia, I would want to fly 1st class just because I never have. So the watch has gone on the back burner until I can decide properly about the trip down under!

    Besides I also need to spend some money on one of the bathrooms to get some handles and other general disables type stuff fitted and I have yet to find out how much that will cost me.Its all spend spend spend rounf here at the moment - lol -

    Now to decide what to have for tea and then look at booking the hotel for the Portugal trip this evening, so at least thats spending on something enjoyable!!



    Oh and more good news, my granny ankles have gone down enough so i can get my good shoes on again - hurrah!

    Catch up with you all soon and best regards,

    Andrew
    xx
  • FormerMember
    FormerMember
    Hi Liz,

    sorry for delay replying this site is very slow today, I've been adding to my favourites list on youtube and thats about it really. No plans at all for tonight so i think i will have an early night in bed and see what tomorrow brings!

    I have some chores to do in the morning, pick up some meds the pharmacist didn't have in stock then get the car cleaned and valeted (for its birthday present).

    I want to buy a decent camera for the hols and also for the helicopter flight I got for my birthday. The flight is 30 minutes and will take me over this area and over where I was born and grew up, I think its the best of my presents I got so can't wait to do it - never been in a helicopter before so it should be absolutley wonderful - when I opened that one I was speechless for the first time in my life - lol -

    So there you have it, more money to spend (but worth it I think) I am going to get a digital SLR camera, thy're not cheap (about £500 for aa basic one) but if I am having such a brilliant present I think it deserves a decent camera to take the pics!

    So other than physio what are you up to tomorrow?

    Andrew
    xx
  • FormerMember
    FormerMember

    Hey guys and gals. Back from egypt. 4 days in bed food poisening then the yanks took over as ended up in same hotel as condelisa rice and the crew of air force one. Never seen as many guns in my life.

    Went to Gods post box at Mount Sinai. and put a word in for everybody especially my mum who not dealing with this very well.



    Andy my hobby is photography. If you really dont wantto buy one call and we will sort out a loan for a day.



    Hoping everybody smiling still. Still waiting for my appointment. MDT team met today . The Mac advisor coming tomorrow. Doc sdigned the ds500. looked really bizzare to see his notes. He obviously doesnt know that Im gonna live forever. Medics hugh!

    Love to all.

    Daz Vegas as they called me over there. Must be my husky voice. LOL

  • FormerMember
    FormerMember

    Hi Daz Vegas.

    so apart from the food poisoning sounds like you had a good time. I am def going to buy myself a new camera, mainly because I do want one for the helicopter ride and I want one for the Porugal hols because, if they are available, we want to go whale watching off the coast whilst we are there! I have read that the Canon E something (basis model) is the easiest to start with and use for beginners, do you know if thats right or any other suggestions, please bear in mind I'm not good with technology!

    Thanks for the word to god, just make sure he's listening, as I want no bad pain days on my hols. Good you have organised the Mac nurse ans stuff as that should help you enormously going forward. Doc know nothing anyway - we are all going to live forever!

    I've just made myself the best ice-cream sundae from a Gu Chocolate Suffle and vanilla ice-cream, its the start of my healthy eating regime - lol - but I did have one of those M&S healthy balanced dinners first and only 3 scoops of the ice-cream instead of my usual 5, so I thought that was fairly good going.

    Anymore hols booked for you inthe forseeable future?

    Andrew