Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Helen,
have a look on the Cancer UK site
http://www.youtube.com/watch?v=lP3eHMWFEkM
it has some stuff on there about treatments and GVHD which may be of use to you.
Dianne,
no not yet, suppose they may have been busy with the site problems, will let you know if and when I do.
Andrew
xx
Hey guys and gals. Back from egypt. 4 days in bed food poisening then the yanks took over as ended up in same hotel as condelisa rice and the crew of air force one. Never seen as many guns in my life.
Went to Gods post box at Mount Sinai. and put a word in for everybody especially my mum who not dealing with this very well.
Andy my hobby is photography. If you really dont wantto buy one call and we will sort out a loan for a day.
Hoping everybody smiling still. Still waiting for my appointment. MDT team met today . The Mac advisor coming tomorrow. Doc sdigned the ds500. looked really bizzare to see his notes. He obviously doesnt know that Im gonna live forever. Medics hugh!
Love to all.
Daz Vegas as they called me over there. Must be my husky voice. LOL
Hi Daz Vegas.
so apart from the food poisoning sounds like you had a good time. I am def going to buy myself a new camera, mainly because I do want one for the helicopter ride and I want one for the Porugal hols because, if they are available, we want to go whale watching off the coast whilst we are there! I have read that the Canon E something (basis model) is the easiest to start with and use for beginners, do you know if thats right or any other suggestions, please bear in mind I'm not good with technology!
Thanks for the word to god, just make sure he's listening, as I want no bad pain days on my hols. Good you have organised the Mac nurse ans stuff as that should help you enormously going forward. Doc know nothing anyway - we are all going to live forever!
I've just made myself the best ice-cream sundae from a Gu Chocolate Suffle and vanilla ice-cream, its the start of my healthy eating regime - lol - but I did have one of those M&S healthy balanced dinners first and only 3 scoops of the ice-cream instead of my usual 5, so I thought that was fairly good going.
Anymore hols booked for you inthe forseeable future?
Andrew
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