Having a bad day

A lot of busy eagles then as same with me, i see them more as buzzards stealing my yoof

I made Macmillan nurse laugh a couple of weeks ago she asked how things were.....I told her on top of every thing else I was TRYING TO GO THROUGH THE MENOPAUSE . ..she said she was too..

Hello Elenium,

I think you are so rigrht, took me a while to realise I could not afford to waste my energy on what others do or don't do. ( Also I have Fibromyalgia, so don't have a lot of energy to waste )! It is so incredibly hard living so far away from him, and at the moment the trains are a nightmare, but I know he is well looked after, and know I could not look after him, as I did my Mum. I am so sorry to hear you are feeling sick at the thought of work, some people can cope, don't know how tho', I couldn't have coped with working when my Mum was ill. Be kind to yourself,and do what is right for you.

Take care, Anneteresa

Hello Jennyicb,

I am sorry to hear you had this pointless visit with the district nurse ( sometimes can't understand why people do the jobs they do ). In my experience the District nurse was very good, able to administer meds I couldn't, and give injections. So I wonder why you could not have injections at home? My Mum's Macmillan nurse told me they preferred to keep patients at home, and there was nothing that could be done at home that couldn't be done in the Hospice.

Take care, Anneteresa

Hi Anneteresa.  The drug mum has injected I think can only be done by a doctor or at hospital. .their gp won't do it. I asked Macmilan nurse too and she said hospital only.  However nurse in oncology said some gps will give it.  She has one next week hope it's a good day for her as getting her there is tricky to say the least! 

She's at hospital two days next week. .awful when she has hospital days such a strain.

Night all.

Jx

Hi everyone,

Hope you are all ok today.  

Am at mum's.  Not a good day.  Consultant has upped  mum's medication.  Then the GP turned up unexpectedly.  She's given mum some other tablets to take during the day to help the nerve pain and she's also given mum antibiotics to take every day.  Hoorah!

My sister now has a stinking cold so possibly won't even be able to come on Friday.  Asked other sister to perhaps pop in for a couple of hours in the afternoon - managed to get hospice to come in for the morning - and she said no.  Got a do to go to in London at lunchtime and will be making a day of it so won't be back home until late.  Nice! So down to me again then...  Looking less and less likely that I'll get to my Christmas do.  Although my eldest daughter said she would see if she could knock of work a bit early so she can come and do mums tea so that I can still go.  For a stroppy teenager she can be really lovely at times.  

And to top it all off my brother and eldest sister have told mum about other sister going for colonoscopy.  Because she really needed to know that....  Told mum not to worry, probably only IBS.  That reassured her, I think.

Don't you just love families....  

I don't drink but I really wish I did at the moment.  Might have to force myself.  :-)

Hugs to all. X

Oh Elenium that is definitely a "screamer" day...

If no drink then chocolate? Hug dogs????

My Mum weak but OK today....requesting strange food...quite gross really had a snickers then mushroom soup.  There are normal foods here.

Oh well. 

Cooking for dad now.

Still not bought Christmas tree. ..

Ran out of incontinence knickers so got HUGE pad things to use. Not going to be popular. ..

Jx

Ps. Why on earth did they tell your mum...tell her when sisters results are back!!!

I do wonder what planet they are on some times?? Do they not think mum's got enough on her plate?  I was trying to make out my brother in law had a hospital appointment (he's had, well still has, testicular cancer and has to go for regular check ups) and mum said but I thought she was going for the camera.  So I had to tell her that we didn't want her to worry.  Told her it was probably IBS as there are a few in the family that have that.

I have made chocolate orange cookies this afternoon - mum's house smells lovely - so I will probably eat loads of those later.

It's good that your mum's eating.  Mum is getting weaker and spends more time in bed but her appetite has actually improved.  She's now clearing her plate every time.  She wanted egg (2 eggs!) and chips today and ate every bit then devoured some of my cookies.  She's currently eating a ham and cheese toastie.

Do you have to buy the incontinence knickers Jenny? We get mum's free from NHS.  The palliative nurse organised it.  They're like the pulls up my kids used to wear when I was potty training them...

Still can't get in the Christmas mood.  Was talking to mum about what we're going to do.  Me and good sister will come to mum with husbands and kids.  Couldn't care less what the others are doing.

Hugs to all. X

Hello all - I'm actually sitting at a proper computer rather than fingers and thumbs in the bath.  Elenium, Sorry to hear its been a tricky day although good she has more antibiotics.  Everyone is different. Mum and I had a pact that I would never fib to her and not withhold information, she said that anything which happens is part of life and even though her life was being cut short all the time she is on this planet she wants to know what happening as its then still real.  To be fair we have underplayed a few things, like my hugely controversial email to my sister which was effectively the biggest kick I could muster in typed word, and, some details from the discharge letter scan.  But the rest, we have kept her in the loop and as she gets sicker she says, ahh well I can't do much about it now but still wants to know.  By no way am I supporting your sister from telling your mother but just  maybe your mum doesn't mind knowing??  but perhaps they are looking to mum to help ease their own worry rather than keeping her informed.  I do hope her appointment on Sunday isn't tricky. HOWEVER, I could scream at them for being so hugely selfish in not supporting you to enable you to go out, would be nice to have the choice on whether to go but now seems that will be taken away from you, a lunch, shopping in London, that can be any time, scream at that one for me please.  Im on my way to mums now, just finishing work then will leave about 830 for 4 hour drive to be with her for 24 hours so i can be with her when the Salvation Army band play the carols outside her house, Im going to put lots of little tea lights on the pathway and video it for her so she will see it.  Oh I do wish you could all be there.  I wish we could all help each other in a non virtual world, we could trade look afters and know that it would be done properly.  actually I think i want someone to hold my hand, someone who understands, really understands.   CHRISTMAS FOR ME IS CANCELLED but the Carols will make me sob, I know it, I can't cope with the thought of cards, writing them, and got one this morning and read it, it means nothing, I feel numb about it.  Ive done a very controversial thing, my estranged father gave me through the post, an envelope to go with flowers at mums funeral if she died whilst he was on a cruise, i just opened the envelope, couldn't resist it. they have been divorced many years and he was incredibly cruel and violent to her under the guise of a VERY visible job and we had to look a certain way etc etc but was dreadful, more to it than that but….  i think he has lived the rest of his life regretting what he was like then to her and us children.  its very sad. its also sad but i sort of want mum to know what he has written.  when she goes she will know how very much he meant to her even though he was a tosser,  bad bad bad me xxx