Nearly out of treatment options

Hello Chocaholic28 

I am so sorry to read your post - i know how hard it is to fight this cancer and to be honest if you aren't the one with the diagnosis or their partner you have no idea just what we go through.

58 years is brilliant and 54 married is amazing (I am on 47 years married next Tuesday). Although i am on a "curative pathway" (how long before it becomes incurable i don't know!) we have already started to do more together. We are holidaying as much as time and money will allow. The cancer has brought us closer together and boy, we were close before. We have 4 grand children and 4 children and we are making as many memories as we can.

Chocaholic28 said:

I’m simply dreading watching him gradually decline

I understand your worries here - this isn't always the case, in the last 9 months on the Prostate Group we have lost Gina's husband and Linda's (Alwayshope) husband. Towards the end of life they describe the last few weeks towards the end of THIS thread:

I know this isn't the prostate thread and you have said there's only Radium treatment left. Have you searched Cancer Research UK list of trials to see if any are suitable to join -

Cancer Research UK - Prostate Cancer Trials.

I know it's not easy, try and stay positive and look after yourself as well as your husband.

Kind regards - Brian.

Many thanks for your reply Brian.  I’m a bit reluctant to post on here as I always feel I’m moaning!   I suppose it was the shock the other day of ‘your PSA is stable although high and the bone mets have shrunk a little’ at his last review changing to ‘your PSA is now over 200, we’re stopping the chemo (after 8 cycles) and booking you for an urgent CT scan’ with the possibility of RA-223 next.  I gather though that this is only provided there are no visceral mets (though I’m not sure hubby’s aware of that).   Yes, we’ll certainly enquire about any trials. 

Even he, who has always remained very positive up to now, is feeling a bit dejected, especially since Macmillan submitted an SR1 form earlier this year for him and he’s been granted the higher rate of attendance allowance (he was only asking about the possibility of a Blue Badge, which he’s also now received).  He’s not in constant pain at present, which his consultant said was good news, and actually felt a fraud when the A.A. was granted, still at 76 being quite independent apart from coping with twinges from an old back injury.  I’ve read Gina's and Linda's posts (thank you for the link) and have also been following Mr U’s blog for a while to get an idea of what the future holds. 

I’ve actually also been following your journey on and off and hope that you still have many years with your wife and family ahead of you.  At least hubby’s lasted 11 years so far since his ‘incurable’ diagnosis. 

Best wishes and happy Anniversary in advance! 

Hello Chocaholic28 

Thank you for your reply although I am so sorry to read of the present situation (especially the SR1 and the Attendance Allowance).

The Prostate group is there for support - yes we have some members who aren't very supportive and feel hard done to - but no you aren't moaning, you are being honest and it's a lonely path you are walking at present.

If you don't feel up to posting on the group, my personal message box is open, you don't need to be a friend. If you want to vent, moan or ask a question, feel free to drop me a message.

Remember to look after yourself and keep on making memories.

Kind regards - Brian.