Bill has gone downhill a bit in the last few days .He is displaying symptons like mild dementia .He dosent always seem to know where things are now wouldnt be able to make a cup of tea .Quite restless especially at night .Couple of instances of incontinence at night and last night the handtowel ended up in the toilet ! He is struggling with even the smallest tasks so have got signed off as cant really leave him for too long now . Not sure how long this stage will last its got to be diesease progression I feel .Anyone out there who has experience of caring with someone with secondary brain cancerany tips gratefully recieved !! .lots of hugs everyone xxx
Hi Granny Sue, I'm sorry to hear Bill is deteriorating. I cared for my father who had a primary brain tumour and I can empathise with you how very challenging it is. I just about got through the experience myself! I was put in contact with a charity called Brain Tumour support and unlucky for us we were due to have a home visit but Dad passed away 2 days prior. They have been in touch since and are great, maybe you could contact them? I found there was no specialist support for brain tumours in the community and we really struggled. My Dad's symptoms increased towards the end with confusion, agitation, waking up through the night and also difficulty swallowing. I'm sorry I don't have any tips really, but just to say I know what you are going through.
Take care xx
Thank you for your support it means a lot will look into that .Its funny how quickly he has gone downhill the nights are the worse he is wandering a bit and dosent always know where he is .The tumour is in the speech center so language and understanding have been affected .But he is also starting to lose the ability to do simple tasks like making a cup of tea etc .Palliative nurse is visiting once a week but he plays down his symptons .However she isn't fooled he had got worse . Thank you for being there hope you are doing ok ? Lots of hugs x
Hopefully the palliative nurse will keep a close eye and help eleviate his symptoms if possible. I'm OK thanks, finding it difficult coming to terms with the caring experience, saw things that replay on my mind and it took everything I had, feel I've nothing left to give to anyone right now.
I hope you are able to get through this difficult time and I am thinking of you xx
That has really struck a chord with me there are things that will stay with me too but that is for later at the moment just keep going .You need time to process all you have been thru ,it takes time and somethings do stay with you always, ask for help if you need it .Its a terrible experience you have been thru and it means a lot to me that you reached out to me thank you and take care xx
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