Where do all you wonderful carers find the mental strength to do all you do. I'm so out of my depth its unbelievable. I don't seem to be able to get it right whether I'm letting my husband do his own thing or not. My head is exploding, I'm so angry all the time and so frustrated. In a matter of weeks my strong, kind, caring, wonderful husband has been diminished by this awful disease and I dont know how to handle it.
Hi Thankyou . I hope my husband gets 7 years but don’t think that’s likely . Everything you read states it’s a short term illness and I’m glad you had your wife well for that time . I generally wake him up with tea and food if I can but sometimes he just wants to sleep . Do I wake him or not . I tend to think he’s better off up and about and if he does push thro he’ll be better . But you most certainly have not failed at anything . You are lost in this situation as I am . But we carry on and that’s a big thing . Take care x
I’m glad I found this thread. My husband has been having tests and we got told on Monday the lump in his neck is cancer and PET scan showed uptake in tonsils and base of tongue. All they’ve said so far in terms of treatment is tonsillectomy and lymph node removal. No grading or prognosis.
I feel like I’m going mad, can’t stop crying, imagining all the worst case scenarios. If I manage to distract myself for a bit, I immediately feel guilty that I’ve thought about something else or felt ‘happy’ for a little bit. Christmas preparations are making it worse, I just want to scream at everyone who is having fun. He hasn’t told his family yet and they keep messaging re Xmas plans which doesn’t help. And constantly feel guilty for feeling so sorry for myself when it’s him going through it. He’s acting like it’s nothing major too which is so frustrating. Wow feels good to write this all down and reading all your experiences make me feel a bit less alone.
Saint !! I feel exactly the same, I’ve had tears myself this morning. Nurses came in to John, then phone call about his medication, then a delivery of medication, then another phone call about an appointment…I shouted….its all about you you you… I started crying. Couldn’t stop. So hea just gone for a lie down…so I’ve opened a bottle of Port lol
Jude X
Oh Saint C, I so hear you!
It’s like you have written the thoughts straight out of my head!
I just don’t know at the moment, how people are able to ‘stay positive’ and ‘take each day as it comes’ as at the moment each day I wake up and can’t see the wood for the trees!
I so wish I could reach out and give you a massive hug, as sometimes I feel that’s all I need xx
much love to you - happy to keep on connecting xx
Hi give yourself time . It took us months to digest our information. Once you have a plan and as time goes on you will find you hopefully find ways to cope better . It’s good hubby is positive. It’s very difficult as you say . But the initial shock is enough to knock you backwards . Xx
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