Scan results... what if?

Hi RunnerChick, I am so sorry to hear what you're both going through. I'm afraid there is no certainty, no clear road and no way of knowing whether treatment will continue or not. Some people seem to manage admirably with, as you put it, preparing themselves, including a friend of mine who is calm and philosophical about her husband's advanced cancer most of the time. But, as you rightly say, all we can do is to support our other half and be there for them although it's important to have an outlet. I can see you belong to several groups, which is good, you need as much support as you can get. The 'rollercoaster', yes it's never easy going through the scan and wait process. Do you chat to your husband's specialist nurse? They are very understanding and you might be able to get more information that way.

Thinking of you,

Thanks for your reply. My husbands cancer is pretty rare so I have struggled to find one group that covers it all, which is why I have gone into multiple groups. I feel that being informed is the best way to prepare and plan, even though the planning part is hard when you don’t know what is around the corner. To be honest I haven’t asked half of the questions I have wanted as my husband is not too keen to know and we attend all his appointments together. I wasn’t sure that I could discuss his case with his CNS outside of appointments but the more people I have linked in with in similar situations the more I realise I can ask more than I have been if that makes sense and there is more information that we haven’t been told. Can they tell you most things as next of kin? 

Thanks for reaching out x

Hi RunnerChick, it's a good thing to belong to various groups, there are questions that can be answered in some that can't be answered in others. I always found that, yes, as next of kin they would give me information and, like yours, my husband didn't always want to know and I also like to have the information for planning. I'm sure they'll understand if you give them a call.

Hugs,

Thank you LoobyLou49 for taking the time to reply! This has been really helpful. Time to hold my breath and wait for the results! Then it’s time to ask questions! 

Thank you again x