Hi
i haven’t been on here for a while but I’m needing support.
My husband was diagnosed with liposarcoma 2 1/2 yrs ago. It was inoperable and his prognosis was 2 yrs. His mental attitude has been great throughout. Sadly the chemo ( doxyrubecin) has caused acute heart failure so he is practically bed bound now , with no energy and no appetite.
I’m a trained nurse but I find it so difficult. He has always been the stoic figure who takes things on the chin but this heart condition is a game changer. Nothing prepared us for this happening. Its as though the cancer is secondary now .
Sleep deprivation is constant for both of us. Him because of heart failure and me because I’m worried to sleep incase he needs me.
I have support but still feel very lonely. Trying to stay brave for my husband and my boys is hard.
Just needed to speak …….
Hi Jmd25
One of the things I had to learn as a carer was the bit about looking after myself if I was to be there when I was really needed. Fortuantly for us things have not got to the level you talk of though in Janices case the doxrubecin caused a lung to collapse but eventually that was sorted and things got a bit easier.
A feeling of lonliness is quite common as we can see in this blog. That staying brave bit - I wish it was as easy to do as it is to type.
Do post on here whenever but if you need to talk remember you are more than welcome to call the helpline 0800 808 0000 anytime between 8am and 8pm 7 days a week - I have certainly cried at them in the past and they are very understaning
<<hugs>>
Steve
