Hi
i haven’t been on here for a while but I’m needing support.
My husband was diagnosed with liposarcoma 2 1/2 yrs ago. It was inoperable and his prognosis was 2 yrs. His mental attitude has been great throughout. Sadly the chemo ( doxyrubecin) has caused acute heart failure so he is practically bed bound now , with no energy and no appetite.
I’m a trained nurse but I find it so difficult. He has always been the stoic figure who takes things on the chin but this heart condition is a game changer. Nothing prepared us for this happening. Its as though the cancer is secondary now .
Sleep deprivation is constant for both of us. Him because of heart failure and me because I’m worried to sleep incase he needs me.
I have support but still feel very lonely. Trying to stay brave for my husband and my boys is hard.
Just needed to speak …….
