Hi Bettyboop71, firstly I'm sorry you are in this situation, nothing fair about this at all. I know how frightening it is and it's so hard to come to terms with knowing that time is not on his side and also what will happen and how you and your family will cope. For me, I took one day at a time literally, I couldn't deal with more than that and one day could cover a range of every emotion.
Information is knowledge and hopefully you will have some answers as to how things are going to pan out, palliative care, hospice maybe or home care. Dad's GP should coordinate his care too. Please take care of yourself and cherish the time you have with your Dad.
Hi and welcome to Carers. I know the deep sadness of losing parents; my mum had cancer when I was six and my dad died 27 years ago. Be kind to yourself but know that you have more strength than you realise. The last time I saw my dad we hugged and cried and that is one of my most precious memories; it helped me to feel closer to him after he passed. I often ask him about things and think what his advice would have been and it's surprising how much of our parents' wisdom we carry with us. Take time to be with friends too, you'll have them to support you when you need them.
Love and hugs,
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I am doing everything myself for my dad he refuses to see Dr any kind of nursing intervention he will not even talk to them. Its been like this girl 2 years while he has been in treatment I go to his appointments he says for a short while and then goes into waiting room as he does not want to listen or know details. I have no other family other than my own children who are on their 20's and I don't like to bother them. I think that's why I am frightened xx
There's nothing you can do to make your dad face what he's going through . Perhaps you could steer the appointments the way they are useful to you? He doesn't have to accept help but there is help available for you. If you are caring for him for more than 35 hours a week you are entitled to Carers Allowance and there's support for applying from benefits from the Macmillan nurse or the Carers Trust. If you have not already registered as a carer with your GP it is worth doing as it opens up other support for you. The helpline is open 8am-8pm 0808 808 0000 and the experts there can help with emotional support and with any fears you may have.
Don't suffer alone. There's help out there for you; please reach out to the next step of support and avoid burnout.
Love and hugs,
LoobyLou If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish.
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